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  1. Valentijn

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    Probably more accurate to describe it as the blind blinding those who still might be able to see a bit :-P
  2. Valentijn

    Positive Health Online: ME/CFS, NLP and the Lightning Process in the Looking Glass

    Wikipedia disagrees: More discussion and the sources are in the wikipedia article.
  3. Valentijn

    Integrated Analysis of Gene Expression Differences in Twins Discordant for Disease and Binary Phenotypes, 2018, Patel and Tangirala

    Potentially, though I'm not sure how rigorous research has been in the area. It's been pretty horrible when involving large amounts of SNPs, due to failure to correct for making multiple comparisons, and gene expression studies could easily have the same problem. It could also be difficult to...
  4. Valentijn

    S4ME: Submission to the public review on Common Data Elements for ME/CFS: Concerns with the proposed measure of post-exertional malaise

    Not if they value their sanity :cautious: I think the usual line is that patients cannot possibly comprehend science well enough to participate in it, unless they also get a degree in the field, like she did. Oh, and someone didn't mention a different point which she thinks is more important...
  5. Valentijn

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    Those who don't learn from history are doomed to repeat it. And I get the impression that UK universities are doing a very poor job of educating psychology students and even medical students about certain aspects of reality that they could be learning a lot from. Instead they are likely being...
  6. Valentijn

    New German guideline for ME published today

    It sounds like a lot of German patients are completely in the dark about getting screwed over by psychobabblers. And the psychobabblers are probably doing their best to keep them in the dark, with the language barrier also restricting access to good research. I've noticed something similar with...
  7. Valentijn

    Well-known, famous people with fibromyalgia

    I hope she'll take some serious time off (years if needed) from performing to rest and get things sorted medically.
  8. Valentijn

    Why don't woodpeckers have brain damage?

    A long life for a woodpecker still wouldn't be at all comparable to a long life for a human. The tissues simply aren't around for as long.
  9. Valentijn

    Integrated Analysis of Gene Expression Differences in Twins Discordant for Disease and Binary Phenotypes, 2018, Patel and Tangirala

    It's using data from a "chronic fatigue" study which combined CF and CFS patients. That one found no differences, so it's a bit odd that this newer study (which also looks at data from twin studies in other diseases) did. It looks like they did correct for making multiple comparisons, but used a...
  10. Valentijn

    Improvement of severe myalgic encephalomyelitis/chronic fatigue syndrome symptoms following surgical treatment of cervical spinal stenosis, 2018, Rowe

    I think improvement may have been overstated. The Karnofsky scores from the physician went from around 50% to around 90%, which is defined as "Able to carry on normal activity; minor signs or symptoms of disease." But the self-rated SF36-PF scores went from about 15 to about 30 for all three...
  11. Valentijn

    OPEN LETTER TO DR. NYE ( Clinical Champion, Liverpool ME/CFS Clinical Network Co-ordinating Centre), c. 2007

    I suspect the actual purpose of that "job description" was to prime any applicants to approach their future patients with fear, contempt, and distrust.
  12. Valentijn

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

    It's an actometer. The accelerometer in an actometer is used to help measure movement - steps, changes in position, etc.
  13. Valentijn

    A comparison of UK and German healthcare provision

    I think it boils down to the NHS in the UK becoming focused on economics rather than health. It's a socialist system seeking to incorporate capitalist principles, and it's getting the worst parts of both ideologies.
  14. Valentijn

    Why don't woodpeckers have brain damage?

    The future of American football: played by woodpeckers :-P Edited to add my illustration of how this will look: :emoji_hatched_chick::emoji_bird: :emoji_football::emoji_baby_chick:
  15. Valentijn

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    Based on the tables, it looks like SF36-PF scores barely changed at all in the CBT patients versus controls. +2 points for one CBT group and +5.8 for the other CBT group. That's pretty much nothing on that scale, and it looks like a lot of people scored lower after therapy in the...
  16. Valentijn

    CFS in Chinese middle-school students, 2018, Shi et al

    It's one of those tricksy scales where the "right" answer is sometimes no and sometimes yes. But the minimum score is still 20 apparently: "Scores in the 20 - 44 range indicate slight to no Depression." according to that site, but it's the "Normal range" according to Wikipedia.
  17. Valentijn

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    It looks like the journal recently switched from being published by the Royal College of Psychiatrists to being published by Cambridge University Press. Apparently Google hasn't caught up yet, though based on the dates on the old site, they only stopped publishing around the new year.
  18. Valentijn

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    BJP doesn't seem to have published an issue since December. Same for their other journals (November for some). They might be having general issues with their site ... one link was dead.
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