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  1. JemPD

    PEM discussion thread - post-exertional malaise

    Oh. Yes, all very good points. So good, that i now consider my post, that took me all day, redundant. :rolleyes::rolleyes::rolleyes: LOL
  2. JemPD

    PEM discussion thread - post-exertional malaise

    Hi sorry when i clicked on this thread it took me to page 6 meaning i must have read pages 1-5 at some point but have no recollection of doing so & no strength to go over it again, so please forgive me if i repeat anyone, even myself lol! Also after reading a bit i couldnt continue past...
  3. JemPD

    IV IG: Intravenous immunoglobulin infusions

    this is exactly my approach too!
  4. JemPD

    IV IG: Intravenous immunoglobulin infusions

    Are any being done? I agree with you, i wouldnt want it without them. But I just wondered.
  5. JemPD

    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    I agree. I'm not as bad as some on this thread for sure, but it is still difficult when all the leaflets make it sound like I can do loads more than i can. Then i have to start explaining that the one line nod to the '25%' who seem just shunted off into a corner somewhere - thats me & then...
  6. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    yes I have some of those 2 they're the ones i've got hanging on the wall downstairs for if someone starts drilling unexpeectedly or the neighbours start yelling at each other - Mine are in a rather splendid lime green colour :D That said the ear plugs i linked to upthread are 33dB reduction, so...
  7. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    anyone who doesn’t realise that the answer to that question is yes, simply isn’t paying attention!
  8. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I think part of the issue is frequency of the sound. I find low frequencies like engine or lawn mowers are almost eradicated by Bose nc700 or QC ultra noise cancellers, (I have tried other cheaper ones but found them nigh on useless). but they almost useless on voices. Plugs are better for...
  9. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    did you try… getting a cheap foam pillow, lying on it on yr side with the muff on, drawing round the outline of the muff- so you know its position then gouging out a hole in the pillow for the muff to fit in I did that it worked ok but a bit fiddly and messy I just made a little slit...
  10. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    @Yann04 just to say sound is by far my biggest problem also. And the lack of control over it is so distressing too, when people can, in effect, assault you just by going about their lives in a normal way. I am in charge of how much light &I get, but everyone else controls sound & smell. it’s...
  11. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    see my post here; you do have to jiggle them a bit to get them positioned. If you dont feel the air pressure change then theyre not in right, I know this because whereas carer can put loop ones in for me, nobody can do these but me. You have to point them in and up towards the inner corner of...
  12. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I dont know if i posted this already way up thread, but I have foud these reviews helpful SOUND SAMPLES — Aaron x Loud and Wireless I think theyre all on his you tube channel for free but i dont have the energy to sift through all the stuff i dont care about so am happy to pay the £1 to join...
  13. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    people rave about loop quiet but i find them nowhere near enough, i think th dB reduction is only 23. so we dont go further off topic, & in case helpful for others, i found these threads where we've discussed before Noise cancelling headphones! Oh Joy! (and other ways to block sound) | Page 8 |...
  14. JemPD

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    yes, i wouldnt bother about it unless they confirm they're rolling it out. When i said it was 'a new thing' I was differentiating the proposed new Severe Dis Group, from something else with a similar name that was already/previously in use. There was a lot of confusion about new the govt...
  15. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    again wondering which noise cancellers you used? theyve come on leaps & bounds recently. I do need plugs as well though but find the combo pretty good, but it does depend on the type of dound. I find the max strength industrial ear defenders pretty good but they grip so tight it hurts so much...
  16. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    interesting, which ones do you use? (headphones i mean) mine reduce more than my 33dB plugs. But it does depend a lot on consistency of the sound I trying to block & the frequency of it.
  17. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Do you find them less effective than the foam plugs then? I use both combined when in PEM. I got a memory foam pillow and picked out oa hole in the foam so I can lie on my side with the over-ear Bose NC700s. They not great for voices though, so i often use then + these silicone plugs combined...
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