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  1. JemPD

    Lost Time

    isnt that literally what a neurologist is? a 'brain specialist'?surely thats what a neurologist does? or should do. Are you in UK @livinglighter ? Wondering how you managed to see these specific experts?
  2. JemPD

    10 easy ways to reduce your fatigue fast! Times article about Katrina Antram

    Its never going to end is it.... Person with poor diet, poor sleep, not enough exercise & plenty of stress, leading to her feeling TATT, gets misdiagnosed with CFS, then thinks that everyone with CFS feels just like she did. Improves her diet, sleep & exercise regime, and hey presto, shocker...
  3. JemPD

    Research news from Bhupesh Prusty

    thats fine, but intent doesnt change the end result, if you trap someone hand in a car door by accident, the fact that it was an accident doesnt stop the persons fingers being crushed. I'm sure he is, & i am very grateful for his efforts. I just wish he'd allow that kindness to extend to 'best...
  4. JemPD

    Research news from Bhupesh Prusty

    as most of us are, but its totally irresponsible - not to mention unkind- to raise hopes of desperate people unless you are cast iron certain. Many PwME may not survive another let down.
  5. JemPD

    First time finding a carer

    yes thats why i always plumped for someone self employed as once you have trained them its done, (assuming you get on well).
  6. JemPD

    First time finding a carer

    did you have agency carers Trish?
  7. JemPD

    Research news from Bhupesh Prusty

    me neither. actually i resent this making us dangle. Either announce it or kep quiet until you can. Teaser posts are not sappopriate in this context.
  8. JemPD

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    so glad i not the only one irritated by this. The ultimate in frustration would be to have to buy a ruddy device especially to use them on that i cant use for anything else! :mad: sort of... i detest it all, with the swiping & the touch screen, but i think thats just because i dont really know...
  9. JemPD

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    thanks Kitty, yes its just the texting. I bought a stylus but have yet to try it to text on the old iphone 5 i was given, it might be ok, but i have to swap the sims &..... ugh its just been too much for me i not had the energy to spare to fiddle with it yet. But yes i might just have to have 2...
  10. JemPD

    Spouse wants to invite a friend to visit when I’m very sick

    so peased you manegd to work it out together :) Hope it goes well
  11. JemPD

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    As i said in post #3 there are several Since then i discovered 3 more things i miss out on... - i cannot get the £200 switching bonus to switch my bank account to Natwest, unless i use the mobile app - i have had that happen to me before i think with RBS or Lloyds. -My local district council's...
  12. JemPD

    Recruiting: A Study of a Positive Emotion Intervention for the Treatment of Long COVID-19 Symptoms, University of California, Lopez

    I'm not a Buddhist & my exposure to mindfulness is through self compassion based trainers like Kristin Neff, & i find the practices of 'noting' really helpful (that might not be the correct term so by that i mean observing & being aware of what i notice and how i am feeling, without judging it...
  13. JemPD

    Recruiting: A Study of a Positive Emotion Intervention for the Treatment of Long COVID-19 Symptoms, University of California, Lopez

    Apart from agreeing with every other post about this, my first thought was 'mindfulness is not about positive emotions' its certainly not about changing feelings. It actively agaisnt calling emotions negative or positive, thats the whole point! i read it about 20yrs ago, it was one of the best...
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