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I wouldnt let location sway your decision to much, i live a very very long way from FND central & was still given that dx, so although i could be wrong, i wouldnt have thought the location makes you any more/less likely to get given one. I think if you get referred with neuro symptoms for...

:rofl::rofl::rofl: oh, very good Nellie, vey good :D

Can somebody please clarify where NICE have defended themselves... is it that theyve sent a rebuttal to the BMJ or is it just a comment on the guardian article or??? sorry getting a bit confused

Oh no! Oh mate that sucks! :( I'm so sorry, i hope it quickly resolves!

interesting i hadnt really noticed that.

oh haha! LOL duh :emoji_face_palm: i was thinking you meant that things had been better recently or something. When you said the following, i focussed on the bit i've emboldened - like 'back to' meant we hadnt been there for a while lol I see how you meant it now, I'm with you and i agree...

Perhaps i am wrong about this specific research. But every other animal model of CFS i ever saw was utterly stupid.... believing you can give ME/CFS to animals by exhausting them. As if CFS were exhaustion! So i certainly hope he's not going to fall into that trap. Surely not.... but nothing...

changed? not sure what you mean, it feels like yet more of the same to me. This is what we've been dealing with consistently for the last 20yrs isnt it?Especially since 2011 when PACE first was let loose. I mean sure the odd better piece, notably from Sean O'Neill in the Times, but from where...

Getting it Right: Addressing Myths about the 2021 NICE Guideline for ME/CFS - The Science Bit Pretty sure @Brian Hughes takes down much of this in his video linked above

I just cant take any more of this rubbish. Seeing this BS reported in the guardian again. they just flippin love it dont they, there is an air of glee about it, it makes me feel sick.

yes its dreadful, and why i only really access S4 for ME related conversation, everywhere else seems to suffer from at least some of this problem. Even MEA fb. At least its safe here on S4.

eeww, that sounds creepy to me, i dont really want someone else to 'craft' my life for me thank you absolutely, and to convince the employer of such. This is whats so dreadful about it, that if 20 people in a big organisation do it & 2 get better, all the others will be blamed for not doing it...

To be fair i dont think this is about it being a PA, but about that particular PA being useless! A patient's leg being swollen & hot isnt anxiety is it!? Prat. I'm not at all medically qualified & even i know that those symptoms in addition to shortness of breath = go to A&E it might be a clot...

exactly, it seems we humans are so prone to "after it therefore because of it" type attributions. I'm sure i've done it myself dozens of times. And likely will again

Already on their way to healing, does 'X' process & instead of realising that since they were already getting better, they would have gotten dramatically better regardless, they accredit it to 'X'. I dont know how you fight that :banghead: seems like everyone is prone to doing it, i know i...

that protest looks really powerful @rvallee Am i interpreting you correctly that antivaxxers are hijacking it pretending it was about covid vaccine damage rather than ME/CFS & LC?

THIS Id like to see a feature length or hour long 'episode featuring all the content from the Dialogues short videos. If that could be made into something it would be amazing. Otherwise i worry very much that whatever is done will be an overall negative. Particularly since we have the whole...

True, but given the fluctuating nature and unclear aetiology of ME/CFS i dont think "i did this treatment and then i became bedbound" (for example), would cut it for any standard. Reports of harm were only taken seriously by NICE because there were so many saying the same thing i think. Defence...

It certainly would, but I think its unlikely that could happen with the science as it stands. The issue would be proving that it's GET that made them worse. Post hoc propter hoc isnt legal proof & could easily be argued against in a court scenario.

Yes i've watched it. But i still maintain that the whole 'mind body connection' thing is much more beloved & popular than it was 20yrs ago. I've watched as the cult of Positive Mental Attitude & mind-body has risen in popularity until its become almost ubiquitous. So an editorial team/journalist...