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  1. JemPD

    UK Government ME/CFS Delivery Plan consultation

    it depends what is meant by 'meaningful'... im pretty sure PACE had meaninfgul engagement with the community, or at least sections of it through AfME
  2. JemPD

    UK Government ME/CFS Delivery Plan consultation

    one of the comments says perhaps you (plural) need to be educated that non of the above is license to treat us like sh*t! And perhaps that the unknown part does actually mean what it says, and that without all that being known, you have no license nor is it morally acceptable, to decide for...
  3. JemPD

    UK Government ME/CFS Delivery Plan consultation

    well amen to that!
  4. JemPD

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    but they arent even saying they have the same underlying theory. Far from containing 'roughly the same chemicals', differing psychotheraputic orientations often stem from significantly different underlying theories (eg cognitive behavioural, psychoanalytical & humanistic therapies are chalk &...
  5. JemPD

    Psychomotor Vigilance Test - discussion and testing

    interesting test 537 over 20 attempts that was with middle finger hovering about a laptop touchpad will try it when in PEM see what happens
  6. JemPD

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    goodness this sounds alarming. does this mean there will be yet another drivel laden cochrane review into exercise? I cant make head or tale of it
  7. JemPD

    Artificial intelligence in medicine and science

    Thank you @rvallee & @Creekside i am more hopeful then :D
  8. JemPD

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    :laugh: i mean, can you imagine!:D although since you would be likely to be referred for consideration for serious psych assessment as a danger to yourself, its not really very funny, but it made me laugh at the thought... is this possible in other countries? not that i think it should be, just...
  9. JemPD

    Artificial intelligence in medicine and science

    For example, if it were asked about FND, its not going to say 'this is scientifically bankrupt' is it? Because all the knowledge that will have been put into it about FND=Conversion disorder=emotional distress manifesting somatically... if thats what the computer is taught, if thats what is...
  10. JemPD

    Artificial intelligence in medicine and science

    What worries me (i am hoping someone can explain to me why i am wrong or even just reassure me that i am!), is that surely the information that it is given will be from what is already known - so it will take its information from the information already held, and use that..... just faster and...
  11. JemPD

    John Campbell - videos on medical issues

    Wasnt the guy in that video involved in misinformation about covid vaccines? not well enough to check up on it now but i recognise his face.
  12. JemPD

    UK: Invest in ME Conference 2023

    this encourages me a great deal. As always, thank you for sharing Jonathan
  13. JemPD

    Neurolinguistic programming (NLP)

    :D lol i highlighted the same sentence to quote scientific rigour :laugh::rofl:
  14. JemPD

    Professor Gerd Kvale on Long Covid

    Indeed. When i first saw this thread title i thought it was about GERD - ie Gastro Esophageal Reflux Disease. which is amusing to me, since their ideas are all regurgitated ideas that have already been thoroughly masticated, refluxed and spat out.
  15. JemPD

    Camptocormia - another disease blamed on conversion disorder

    They noted the patient was receiving secondary benefits, that is, constant reassuring parental attention and care [14].my god what criminals these parents are, reassuring their child, caring for them.... how utterly terrible! Lock em up i say!
  16. JemPD

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Does anyone have a link to the PACE manual for therapists (GET) that actually works, i had 2 links but they dont work anymore (inc the one on MEPedia)
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