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  1. J

    Ideas to try to improve care of ME/CFS patients locally?

    I knew I'd get sensible and useful feedback. I've already tried giving the MEA Purple booklet to my GP practice but made no difference.. I couldn't make them read it or use the information. I like the focus on PACE point from @ Esther12
  2. J

    Ideas to try to improve care of ME/CFS patients locally?

    After the PACE debate on Tuesday which gave me so much hope for improvements, I got to wonder what I can maybe do. So I've got an appointment with my MP in a month and am compiling a list of my experiences of lack of biomedical care locally over last years. Work in progress. Then I got to...
  3. J

    A general thread on the PACE trial!

    I feel this thread is going to be very useful. :thumbup::thumbup::thumbup::thumbup::thumbup::thumbup::thumbup::thumbup::thumbup::thumbup::thumbup: I've got until 23rd March to get a list of useful stuff to discuss with my MP. I am very aware that I can get very angry (and possibly...
  4. J

    How to follow up on the Carol Monaghan debate in Westminster

    I have just remembered who stopped and showed interest at the #MillionsMissing and it wasn't Jacob Rees-Mogg ......it was Hilary Benn. I did confess to being whacked out and brain faded! Apologies for misleading post earlier. I must be more careful.
  5. J

    Cochrane review and the PACE trial

    That is so brilliantly and succinctly put @Bob.
  6. J

    How to follow up on the Carol Monaghan debate in Westminster

    Yes @chrisb you are right. Thanks.
  7. J

    How to follow up on the Carol Monaghan debate in Westminster

    Would it be useful/helpful to raise the topic of how a certain high placed person publicly declared the PACE trial as a "Great, great trial"? A public demonstration of poor judgement? Maybe?
  8. J

    How to follow up on the Carol Monaghan debate in Westminster

    I was at the #Millions Missing demo outside Richmond House last May and remember both Jacob Rees-Mogg and Yvonne Cooper being good enough to stop and engage with some good spokespeople from #MillionsMissing. (That's if my memory is correct, I'm a bit faded at the mo) Would these two MPs be...
  9. J

    How to follow up on the Carol Monaghan debate in Westminster

    I've just had confirmation from my MP's assistant that I've got a meeting with my MP about PACE and the lack of biomedical treatment which I have experienced over last 13 years in his constituency. Whooopeeee. I just need to get myself organised so the sensible and logical me gets an airing...
  10. J

    Lymphocytes eject interferogenic mitochondrial DNA webs in response to CpG and non-CpG oligodeoxynucleotides of class C, 2018, Rosen et al

    I found this a useful review to get to know the background of recent Immunological advances. It has the advantage of being in a high impact paper and again has lots of useful refs. Plus mentions of T and B cell homeostasis, PAMPS, DAMPS, etc which I found very helpful to get context. J...
  11. J

    Lymphocytes eject interferogenic mitochondrial DNA webs in response to CpG and non-CpG oligodeoxynucleotides of class C, 2018, Rosen et al

    Thanks @Trish hopefully I can get that to stay in my foggy brain and so make use of it next time. Fingers crossed!
  12. J

    Lymphocytes eject interferogenic mitochondrial DNA webs in response to CpG and non-CpG oligodeoxynucleotides of class C, 2018, Rosen et al

    I found an open paper from 2016 which might give some useful background and refs? https://www.ncbi.nlm.nih.gov/pubmed?cmd=historysearch&querykey=10 The above doesn't look right? How about PMID: 26939583 or DOI: 10.1002/ijc.30074 or Int J Cancer. 2016 Aug 15;139(4):736-41. doi...
  13. J

    "Time for Unrest": ME article by Nathalie Wright

    Well I was not put off by the word Science in the title. However I've had a fair bit of practice in ignoring weird views during late 70s and early 80s. For example a male head of Physics wouldn't have me in his A level class saying "Girls can't do Physics"! At this same school I wasn't allowed...
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