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I am totally with you tooo_O:thumbsup:

I am realising that my fluctuating response to energy using activities is affected by how “poisoned” or otherwise my body is at the time of energy use. So if I try to ignore really how I’m feeling and simply do something because I can’t resist eg because the sunshine is beautiful in the garden...

I wonder and hope, that having listened to this interview, somebody who is good at word-craft, can get Jeremy Hunt on our side about damage to pwMW caused by GET. Jeremy Hunt also banged on a lot about transparency in the NHS when things aren't working for patients. :thumbup:

What I am sharing is just my personal experience (so n =1 and not statistically valid ) hence not medically suggested/approved of etc etc. However this has been consistent with me for 21 years after developing ME after Glandular Fever. I have discovered what seems to help a bit with being able...

I find this v v interesting. I did an M.Sc project ~10 years ago now looking at betaherpes viral loads in brain tissue using RT qPCR. I only found HHV6A but I didn’t get results published cos due to ME I didn’t get to finish and had to crash out with diploma. From what I learnt and have...

I have donated what I can and have everything crossed that David Tuller gets what he needs to continue his advocacy for us all. I so much appreciate his brilliant challenges to the UK based out of date wonky thinking about ME/CFS. :thumbup::)

. My gentle wonderings and it would be lovely to get more background information to help me make sense of stuff :- 1) Will there ever be a deep dive into the sequences of the HLA regions of these 2600 self reported CFS patients in UK Biobank as these technologies get ever cheaper? 2) Will the...

I am sure this has probably been brought up elsewhere so please ignore me. I sense that I have a lack of energy ( for me ME = missing energy) which causes all my symptoms due to my homeostasis systems being out of whack. My tin pot understanding is that lots of energy is used by immune systems...

I'd forgotten I'd already seen this;) However it gave me a good boost (again:)) to see even more good quality evidence undermining the old delusional ideas of poorly informed psychiatrists.

Does anyone know of an accurate, precise and reliable toxic mould home test kit where the samples are sent off to an accredited lab for analysis in the UK? I would be interested to be able to tick off "mycotoxins" as a perpetuating factor in my decades with this disease.:thumbup:

Thank you for the information, it always helps me. Yes Cinders66 you make great points. I am not familiar with the awful Manchester work re RCGP e-guidance but totally feel that this hijacking of the ME issue by the BPS lot is the real nub of this problem. I'm really hopeful that David T is...

Thank you for that information.....startling. Since I obvs don't know the details of processes used by NHS, the more I get to hear the more Kafka-esque it gets:(. What are all databases used for?

I haven't seen this before....v. interesting and I aim to read later..............although those 2 authors PD White and E Crawley warns me that my energy levels will need to be in better state before I look:nailbiting::whistle: Plus I noticed PD White using Queen Mary as his location even in...

My understanding was this paper only covers a few (3 or 4) area health authorities. My point really is : How can the government/NHS budget for proper care of ME patients without mining their databases to get the accurate objective measure of the ME/CFS patient numbers to be funded and...

I asked the question about whether DoH/NHS yet know how many people there are in the UK living with ME? (following on from the questions asked by the brilliant MP Carol Monaghan in the various parliamentary debates earlier this year where it was clear the DoH didn't) I still don't know the...

Well my absolute favourite piece of the whole day was my hero David Tuller. He was awesome and just said it how it is. Just brilliant. Thank you David Tuller

I was pleased to hear this discussion. However I was concerned that the issue of EBV being a latent virus seemed to be avoided. That some of her oversimplifications might not have been that helpful?

This I feel is very interesting and is quite a hot topic in a fair few areas I understand. I did a pilot study looking at Beta-herpes viral load on the Stanley Neuropathology consortium collection of cerebellums from 15 normals, 15 MMD and 15 schizophrenia about 10 years ago.( Unfortunately I...

I have a vague memory of ATP being recycled through ATP to ADP to AMP. The most efficient place to recycle from is ADP ? Plus that if it gets to AMP stage then AMP can be excreted and so the time taken to build more ATP takes even longer. However I am sure somebody has been onto this in the...

Mariovitali.....wow. Very very interesting.:thumbup: