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Thanks Trish…..I see now that I had seen this back in May. My memory clearly getting wonky too.

This set of authors produced another paper published . 2021 May 4;19(1):193. doi: 10.1186/s12967-021-02819-0. Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) C Linda M C van Campen 1, Peter C Rowe 2, Frans C Visser 3...

****This is simply my own personal experiences and are in no way a suggestion as to how anyone else should treat such things.**** ************ I have no medical training what so ever. *********** I find my heart goes into wobble mode /rapid beats a few hours after I have...

I’m sure there must be a microfluidics set up very similar to a continuous glucose monitor eg from Abbott Laboatories for diabetics . Surely if they knew a good small biologic to track, then a useful device for pwME and/ or Long Covid could be devised? What an interesting PhD project for...

I am totally shocked and saddened by this type of stuff. For both Long Covid and pwME. Equally I can't work out why I am that shocked.:rolleyes:

I think you have just summed up my situation so accurately. That's almost spooky yet very much a relief that I am not mad. I feel I have been misled for so long by 80% NHS HCPs over last couple of decades. I have a distinct memory of Prof [blank] at Infectious Diseases Clinic in [blank] simply...

yes I too thought it was really clear and brilliant. To the extent that I’m thinking I might ask my daughters and sisters to listen so I might feel better understood. I’ve had ME following glandular fever in Jan 1999.:thumbup::hug:

I think that piece is a brilliant brief summary which I would love all our UK GPs, consultants in fact all HCPs to read. I feel sure that would help them to improve their reaction to ME/CFS patients. Thank you for sharing. Gave me a much appreciated and needed morale boost.:thumbup::hug:

Wouldn't it be amazing if this simple home blood test get's made and circulated by GPs? Just WOW. Then hopefully that might mean that all ME/CFS patients could get sent to their homes a blood test checking for auto antibodies, so wherever on the spectrum, a pwME is, the data could be collected...

This reminded me so much of my experiences with the HR department assistant literally jumping up and down in front of me shouting at me to DO something. I explained as clearly/ calmly as could I could muster that I would have happily given my right arm if I could have got back to work again...

I’m concerned that I might be stating the b****ing obvious plus I only ranting (again) I’m afraid. So please so please simply ignore this.;) From my decades of having “post Glandular Fever disease” ………aka ME/CFS etc, this sounds so depressingly familiar. I have found that U.K. healthcare...

Donated

Back in the day when I was a BMS(biomedical scientist with genetics, immunology and haematology background) a sample size n=15 was often used as a pilot study to cheaply test the water. I am hopeful that the progress of technology will slowly move in this direction to enable real time dynamic...

Done. I will keep doing so whilst I can, too:thumbup: I am so grateful to David Tuller for his long time, awesome and intelligent effort in getting all this rubbish from the BPS crowd out there and challenged. Many thanks DT.:)

This does seem worryingly true.

What I can never understand is how SW keeps the ear of people in power?.....apologies for my rant. Especially after Jonathan Edwards, Tom Kindlon, David Tuller, Ben Hughes, Caroline Wiltshire and all those other heroes of mine, who have worked so hard with all their brilliant clear demolition...

I received my e-mail at 12:10 to my main e-mail place. So all good:thumbup:

Done. I'm so pleased we have David Tuller doing his stuff for us all.:thumbup:

The only time I notice anything off with my breathing is sometimes I wake in the night and my mouth is open and very dry, as though I have been breathing through my mouth for a while? I noticed that my nose isn’t blocked so I don’t know reasons for me to be breathing through my mouth. I have...

That video was gobsmacking to me. :banghead: How can some people come across so unbelievably arrogant in such a short time. Or is it just the topic? Do none of them realise that people like me never knew that glandular fever could have such long term issues. Or that a Campylobacter infection...