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The IAME members are listed on our international advocacy page, and you can see pictures, shoes and stories shared at the IAME #MillionsMissing protest in Geneva today at https://www.facebook.com/groups/IAforME and on Twitter @IAforME. IAME doesn't have its own website yet, but as the...

As we say here, we are extremely resistant to any move attempting to reclassify M.E. as a "medically unexplained symptom." I emailed the Countess of Mar last week about the IAPT roll-out and it is on the agenda for our Forward ME meeting tomorrow. The aim of the IAPT-LTC programme is to...

We have now published an updated information page on GET and CBT, which links to our landing page on treatment and management. We know that lots of people coming to our website are looking for information about the treatment/symptom-management approaches that their GP or specialist has...

Hello, Clare here. I appreciate your patience given that I haven’t been able to give the forum my full attention recently. You have asked about Action for M.E.’s view on PACE's methodology and its claims that CBT and GET can improve patients' health and lead to recovery. Our view hasn’t...

Hello, Clare here. Action for M.E.'s Chief Executive Sonya Chowdhury has been on annual leave (and is still out of the office) but has asked me to post the following on her behalf, given the keen interest in this topic, and the fact that she received one or two emails over the weekend. She says...

Thank you for your feedback on this interview, which I've shared with Sonya. I agree that the phrase "public health scandal" is effective and we will add this to the key messages we share about M.E. and its impact. Clare Ogden Head of Communications and Engagement Action for M.E.

Hello I'm here to respond to some of the issues raised on this thread. I'm not able to address all the questions you have asked in one post – there are quite a lot! – so please bear with me. I want to be really clear that we don't ban people from posting on our page simply for asking...

Thank you @TiredSam and others for your welcome! I’m going to answer a couple of this thread’s most recent questions. Plus I’m also taking a look at other posts Action for M.E. has been tagged in. Happy to explain our social media moderation process. We do this in line with our website terms...

Hello - we regularly respond to Government consultations on welfare benefits, and survey people with M.E. to do this, so yes, absolutely. We have done this most recently for the NI independent review of PIP and the Work and Pensions Committee inquiry at the end of last year. We also ask people...

Hello – it’s Clare Ogden here, I’m Head of Communications and Engagement at Action for M.E., and I’m posting on behalf of the charity. It is our intention to engage with Science for M.E. by contributing to discussion, where we have the resources and capacity to do so, bearing in mind that our...