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@rvallee Certain doctors could start by treating taxpayers with respect, and then work their way up to respecting patients' and their symptoms. A friend has interstitial cystitis (IC), and is under a well-regarded urology department. The NHS is currently shunting IC into the "MUS" mausoleum, so...

It was Peter Piot of LSHTM. He told the Guardian: "I constantly felt exhausted, while normally I’m always buzzing with energy. It wasn’t just fatigue, but complete exhaustion; I’ll never forget that feeling. I had to be hospitalised, although I tested negative for the virus in the meantime. This...

I find ORS slightly helpful with OI symptoms, but I found that taking ORS at consistent intervals through the day led to troughs in between the doses during which my symptoms were markedly worse. Once a pattern of taking ORS was established (about 2 weeks) my system seemed to compensate - or...

Me too. The "horrible agitation" was like something from a psychological thriller. My sleep was so disturbed on LDN that I had to stop after a week.

I was surprised to see Neil Riley's piece just as Greg Crowhurst's blog appeared on the MEA website describing Very Severe M.E.: https://www.meassociation.org.uk/2019/08/very-severe-me-its-time-for-something-new-by-greg-crowhurst-16-august-2019/ . I also note the MEA's own descriptors for Very...

Work journal is ']abstracted by Pubmed, despite not appearing in PMC's journal list. It is held by major libraries across the UK and elsewhere. The journal focuses on issues of interest to occupational physicians, and may therefore be read by those controlling patients' access to workplace...