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Yeah! How to look like you’re doing something you’re not doing?

I can’t read the science as I’m in a crash. But my experience since COVID 2020 has been that my immune system can’t fully handle infections anymore and I get more infection symptoms when I have to use my steroid inhaler, which I do as asthma worse post COVID too. I’m an anecdote in agreement.

As I thought, way beyond the deadline for professional politeness in terms of a lack of response. They aught to be well past the first holding email and on to an issue based response. But they are not. A very public show of contempt, this lack of response. Or gross incompetence and...

How many days has it been since we sent the letter?

In my experience any cognitive effort especially to read technical information, do repetitive tasks inorder to build skills or rapidly task switching causes my cognitive capabilities to plummet. I simply get worse and worse until I can’t function at all. It takes a long time for me to build back...

Me too.

Any particular brand or formula?

That’s really a good resource thanks. @SNT Gatchaman! I’ll delete this next question later as off topic, but I’ll forget to ask if I delay, Do you or anyone else who sees this, know where I might find info on body temperature staying low with chronic/secondary infections or in certain people...

Excellent full analysis. Yes to community relationships. I especially appreciated your final thought though.

According to https://www.bythebyreholidays.com/journal/history-of-bath "Bath" is derived from the Angle Saxon word "bað,” "Bathan" by the Britons which meant "boiling waters" A bad cauldron.

:heart: :broken_heart:

For me personally as a person with ME & LC which I don’t feel to be the same thing, as in I do not feel like I have ME but more severely than before, I feel like I have LC as an addition. So I’m pretty keen on maintaining some separation in research etc. In social care it’s all the same. But...

I think the difference there will be, she got lucky and got a dr/team who cared about her welfare and best interests. No guarantee of this whatever your age, remember Liverpool pathway. No one should be denied treatment at any age. However in getting to 90 this lady had proven herself a capable...

Thanks, I look forward to reading. Anecdotally I have gained the impression that those with ED have been suffering much of the same abuse as people who self harm or are suicidal and people with Learning Disability, Autistic people with certain support needs or medical conditions that require...

Oh great I was too afraid to look!

I’m guessing it’s because they want to win at the algorithm. They’ve realised that the majority of people who have become unwell via infection post arrival of COVID pandemic will be more likely to associate with that as a primary diagnosis even where LC patients meet the ME criteria, including...

What do they mean by “stress”, I wonder? I find myself too stressed to look.

They just say stuff. :unsure:

Thanks @Joan Crawford! I’ve had most of those already and been told I cannot have one. So maybe….

A very important subject. Thanks @Dolphin.