Search results

Thanks @Trish. Have they done a letter to the UK health authorities as well as the CDC, I couldn’t find but maybe just because my heads spinning.

US or UK?

I don’t think that we are powerless. I think that Cochrane perceives no obligation to respond to us upon points raised. Cochrane don’t have a self interested reason to value our lives or our quality of life. They have in fact damaged our chances in this respect. But the consequences are for us...

So sad to hear this. RIP Ady. :emoji_bouquet:

It means recognising that almost every patient with a chronic health problem can be helped to optimise well-being and functioning with good communication and understanding of the impact of symptoms. I know your knee hurts Annabelle. Because I have a high level of professional understanding...

Could a less severe spinal injury that doesn’t cause paralysis cause some of the same problems, and is there overlap with disruption to immune function of the type that can occur with TBIs?

I’m also thinking for most people it’s distressing to witness an another person in pain and especially a child. The child may lose sleep from the pain and their parent too. So maybe they all go a touch insane. That’s reasonable. A family might appear to present themselves strangely after all...

How long did you have them for @jonathan_h?

Yes. No medicine. I have not told my Drs about this recently because they banned me from speaking to them about my long term health at all. Only allowing me to speak to them when I’d give up trying to talk about that and was telling them about all the acute urgent stuff that was going wrong...

Not as dry as you might hope.

Parents can and do abuse their children in strange and unusual ways. Still society hasn’t found good ways to support children who have certainly and demonstrably been abused by their relatives and caregivers. Children taken away from their parents are very often abused further in the state...

They’re collecting Chronic’s there. An unhealthy pursuit if you ask me.

The villagers are sick. She dances with satan. Burn the witch.

That’s so interesting @Mij I am about to have a tilt table test which I am dreading last one I had was a normal(ish?) result but I felt horrifically sick for a long time following it. Shame I couldn’t have got one of these to take in with me to check it out. I’d thought due to how I did have...

It pains me that they have decided that there are; FND phenotypes

@Andy congratulations on your team project inspirational!

Would that be a something maybe people with an ME diagnosis and compatibility of symptoms could fairly easily be checked for with the blood tests?

@dave30th interviewed Betsy Ladyzhets for his podcast a while back I recall.

I love it!

Some good news phew thanks @SNT Gatchaman. Good shout @Hutan, we could really do with the help. Perhaps @dave30th may encourage them on Cochrane coverage also?!