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This is so good!!! Thanks everyone who has worked so hard to write, promote the petition getting the word out about the negative influence of the review on our access to healthcare, thank you also to everyone out there who supported and signed this petition. :hug:

Oh thanks! I really appreciate this explanation aimed at my level. Yeah, that sounds about right. Just an unfortunate heap of allergies. We all have asthma so to be expected I guess. Also intolerances, thats on the nail as I randomly developed a prickly mouth whilst eating strawberries for the...

@Jonathan Edwards, do you conclude that MCAS doesn’t exist? I have seen you talk about this elsewhere but I didn’t understand what you meant because I don’t speak science or biology. So admittedly if you answer this question I may still not get it. But maybe if you use very simple language…… I...

There’s one Dragon who snapped this one up, and he loves this shit, it’s his thing, so I’d be very surprised if he’d pull out. Probably a good business decision this one, in a society that collectively hates a disabled/chronically ill person, refusing to think positively enough not to be...

Yes sir.

Okay. Thanks!

Oof… I can’t help but feel the NHS and Drs in Distress deserve better. But this seems like a worthwhile use of their time at least.

Just checking that I wasn’t mistaken about something I said earlier, they did claim on the program that it was related to acupuncture no?

Yeah, I wondered that. Also really not so easy to read even for the sighted.

For sure.

This woman is well into adulthood. Being a woman isn’t really a good defence when you’re climbing over the mournful childless bodies of your sickly sisters to get yours. She has her part and certainly isn’t behaving honourably. If she really thinks the ear seeds are a viable treatment option...

C That final line you quoted :emoji_boom: needed to be said. Plus investors going after other investors that they think give them a bad reputation is preferable to when they close ranks. But…. His repetition of the lack of knowledge on the product or what it was supposed to do, imputing...

Yes this is an important point. Also, and I don’t know how this would be best addressed succinctly, but they say ”unrelated” issues, and such issues could be genuinely unrelated, but since ME seriously impacts on one’s general stamina, muscle strength (directly via illness and indirectly via...

Yeah.

I agree with everyone here! All the views. ME history isn’t like the Post Office manager situation. Except….For the central over arching theme. People made victims of an injustice with fatal consequences. One that several branches of the state and individuals in high office there were...

It's also telling about the mentality in the culture of medical research that they point to millions that were badly spent, including on people who literally don't believe in chronic illness, have absolutely nothing to show for it, and still think they did a good job. :emoji_clap:

No sorry I didn’t mean to contradict you! I wasn’t being clear there, I just meant I had the wrong idea about where she came from, because of where she studied perhaps or just my bad memory. I was also trying to say there is no escape from BPS wherever Europe has colonised, so has BPS.

I think there is a good deal of abuse in Canada too. I thought she was American, perhaps living in Australia? In any of those countries perhaps the middle classes get better treated than in the UK but for ordinary people I think it’s horrific in all three possible countries for disabled people.

I remembered that she’d done/said some stuff that most of us would find deeply unhelpful. But I didn’t remember what. When I said she said the illness was biological I meant that was what she said specifically in the talk. I think she presented this fact in an unconvincing manner, because she...

Ahh thanks!