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Nice interview and thanks for all hard work. I can relate very much to the development of disease, from hanging on for a long time, to the completely other spectrum today. Anecdotally Dublin will always be a special place, cause that was in the early confusing days of ME. Just about 15 years...

Great read. A proper translation to English would be handy. Nice summary of historical facts, and what a contrast to Reimer and Malmquists ideology-driven and rant-like approach. It is a shame that the ones with no merits on ME, but so in need of attention, often gets that attention. Many...

You both have to laugh and cry, when the author gets it all completely wrong in the title of the book. Tired all life..? What’s that? It’s not ME. A fundamental misunderstanding, and says a lot about lack of knowledge and poor quality.

Great initiative. Early on it was an interesting anecdotal story by a prominent patient, but nothing more than that. Then it developed to something very worrisome non-cautious speculation, and I admit I just lost interest. That’s not a adequate response, but some kind of personal protection...

Merged thread Randomized Re-Opening of Training Facilities during the COVID-19 pandemic The train-study. Pre-print and not peer reviewed. The Norwegian institute of public health and Atle Fretheim involved. That is the guy who sent some quite interesting mails to Cochrane last year when...

I also read in a Swedish newspaper a couple of days ago (Aftonbladet?), about some sort of closed forum for physicians (Facebook-group?) where they were joking quite explicit about the fact, that it is not long before the first patient complaining and insisting on long term illness/symptoms...

Harassment? Where are the context of years and decades of quackery that patients have had to put up with? That’s just silenced. How thin skinned can you be, and should patients that have gone through much much worse year after year not speak up? There certainly are no limits when it comes to...

Nice. Both 1980,’s and 2018 are inaccurate, but it is good to see a english paper getting things just about right, since much of the eminence-madness originates from here. Nobody wants others to be ill, but maybe there is something good in the aftermath of covid-19 for ME-patients. Then again...

- Many patients have experienced the opposite of members of RN. So what? Blame those patients for not doing it right. Uuh? - Managing stress... Is that really ME? - As always, the patient organization is the great enemy? To require proper science, proper methods and ethical standards are to...

Carl Sagans ECREE may have been stated with outer space in mind, but it surely points out the important principles of all scientific disciplines. Under all circumstances, one could also say that LP have some outer space touch to it. ECREE = Extraordinary claims require extraordinary evidence...

It is hard to know where to start reading this masterpiece of shit. But one comment when it comes to Andresen and GET. Glad it helped her. Wouldn’t it just be wonderful if every patient could train themselves back to health. Easy, safe and at almost no cost. Hard to think of anything better...

This Saturday, in the papers weekend magazine, Dagbladet will run what seems to be the main article with the psychologist Nina Andresen, The ME-war “Got well from ME with training and therapy. The brawl started when she wanted to help other patients to recover”. Expectations are low. The...

Patients are complaining nobody’s, that just ought to shut up. They have no insight in their own disease, have no ability to understand anything on methodology, frankly no right to speak up. Be quiet and applause everything that comes your way in the name of science. Thats the attitude, not only...

Good points. Personally I find this blame game disgraceful. It is a classic case of adding insult to injury. In retrospect it is hard having to put up with the rationale behind LP that just don’t fit in at all. Then it is hard being told that you are to blame if it doesn’t work, also harms...

If that is the case, more than placebo, LP is getting at root cause of ME according to Flottorp. Am I right? And it’s happening almost instant, with long lasting and quite dramatic effect. So what exactly does that mean then? That the cause of ME is fear/avoidance/unhelpful wrong thought pattern...

Given what we already know and the history, a LP-study is not where money should be spent, but as stated previously, it would be nice to settle LP once and for all. To try to stop a study is possibly not a good approach. And as far as I understand it, that is not the case either, though the...

Would like like to add that it is a straight forward lie, when Flottorp states that LP dosent make way or mean that you should suppress symptoms, you should just interpret them in a whole different way. Youre «doing» ME cause of fear and avoidance of symptoms, so they are not real, symptoms are...

Yes the language of what LP is supposed to be changes constantly. For a long time it was never treatment, but some kind of training, to avoid getting in conflict with marketing laws. It was never CBT or something like that, now it seems to be all kinds of things. An element of this and that from...

The level of absurdity are of epic proportions. The entire text, and especially Flottorp, sets a new all time low. Some parts of medicine, cause that’s what it is?, are so broken and unethical, that it is beyond what any reasonable person in their wildest dreams and nightmares could imagine...

The article «The physician Marte got well from ME» is paywalled. But what I assume is the essence of it, is easily accessible via Recovery Norway, also with a link to Tidsskriftet, a paper for physicians. It is great that Marte recovered. She is now working as a psychiatrist with a 4 day...