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It is one of a kind that in context of PACE, CBT should solve the disease. This special kind of CBT to address unhelpful thoughts (fear of activity) as cause, is insane. It should be scrapped. Then no one would oppose the usual supportive CBT as offered for many conditions for mere management...

Being much to long here, but many of us have walked down this road before. No one else should do it, at least not without warnings and advice. Be very careful now, Gary! You are still quite early on, and this is a very important time to try to do things right. Many of us have done exactly the...

Well done to another great podcast, Gary. I like the approx 30 minute format. And a big thanks to Trish. Great listening to your powerful story told with such grace. Thought it was an excellent example of immense strength. ME-patients truly have a remarkable ability to endure and stay mentally...

Welcome to Norway! No one should be blinded by a little funding for biomedical research or a prime minister offering a kind of excuse. That doesn’t change the fundamentals. Don’t get the impression that the situation on the other side of the North Sea is good. Except some funding and some...

Yes, great article documenting young patients not so great encounters because of lack of knowledge. I think each and every ME-patient, young and old knows a thing or two about this, due to the negative stereotyping of the group as a whole. Reminds us of the great paper a couple of years ago on...

I guess I’m far from alone wondering what drives people like Vogt. He obviously has his medical exam, often calls himself a media-doctor, but still a man with no clinical experience, nor theoretical knowledge of ME. Despite this fact, he holds extremely strong opinions lacking all sorts of...

Haha. Would be a given in a split-second back in the days.. Must admit it took quite som effort and doubt doing the maths. Still not sure. It would be like 300.000 out of approx 5,5 million. Anyone?

Think its more like a little over 5% of the population watching the documentary, but still quite good numbers. Feedback is good, understanding better. Personally I liked the simple things, like showing the classic illustrations of a battery never charging, and the simple sentence after watching...

....not to forget that the least thing you or anyone else need is clinical evidence of things not only working but causing direct harm in the short run, but a lot more critical in the long run and for overall prognosis.

Great documentary giving insights to Fluge/Mella and the team and many brave patients. Exiting and thriller-like when observing the team finally opening the code and revealing the results of what patients got and response. What a downer.. And then, the amateur asking the big question of how...

Great episode, Gary. Interesting listening to Shepherds own firsthand experiences with the disease in the 70’s. Can only speak for myself, but guess many of us could tell exactly the same story now 40 years later.. Shepherd is really a great capacity knowing the disease and medicine from the...

Thanks, David for a great talk on PACE. I like the very important final comment: you just dont give patients bad science because there is nothing else to offer them. That is what it is all about. Pointing at and highlighting all the troublesome flaws is really important, and at the end of the...

I think we all agree that language and words can be difficult, especially in a short text. That may be the case for most things, but given the history of ME, many words and sentences gets touchy. Not strange at all, because ME-patients are aware that words is not just words - it matters with...