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Thought the session was good. Hopefully the MPs will keep it up and work for solid actions. Brine was bad on the lack of applications as an excuse for funding. Even worse, just stating that it is up to patients to turn down controversial therapies. Well, if it only was that easy. How easy is...

What an embarrassing letter. And to co-sign? Wow. Its like there’s no capacity to come to terms with the fact that many patients are sick for a long time, many even deteriorating. Instead of wondering why, seek explanations, systemize and learn, the result is full cognitive shutdown. The...

Indeed. It’s good to know that the quiet slow science is working beyond the nonsense that recovery/getting better from ME, is up to motivation and “the way of thinking. The other side of it, that media probably have no clue of, is that patients meet this bollo... up front or behind they’re...

At least the journalist got a comment from Mella. That’s worth something. The description of the course is quite extensive.I really do wonder what kind of ME-patients that are able to follow such course? Says a whole lot of the many mixes of the meaningless fatigue and the extremely...

Interesting points. One thing is the important science, and focus on measuring the right things, if even possible. Guess the main point also could be transferable to other parts of ME research. But my knowledge of this is limited. But do think that the main point, the rhetorics of «this is a...

Old sayings and truths are ME patients worst enemies. I would go as far as to say that the most important thing is knowledge of potential harm of old sayings like “just push trough”, live like before”, “don’t listen to your body” and things like that. In a couple of general sentences...

Read the «stories» published on tv2, and on the more philosophical side on the last day of 2018. First: if made with some effort and knowledge by the journalist, pieces trying to describe ME in general, can turn out ok. When adding anecdotes it can go anywhere! That is not ment as criticism of...

From the blog: Q: What are the estimates of numbers of ME patients in Norway? We often hear about 10.000 and 20.000, but nobody really knows. I believe it may be higher than that, since numbers from the Norwegian patient register show that there have been an average of 2000 new diagnoses each...

There is so much to like about Montoya and I really appreciate that he consequently speaks about the failures from the community he himself is a part of. A lot of doctors should be doing that to gain momentum, but it requires some serious guts admitting a thing of two, and unfortunately will not...

No, these estimations are about right. What we can't accept is the 2000 per year and all the epidemic-propaganda. That is just nonsense.

I read the virology blog and left a comment (answer to Sten Helmfrid), but it seems it just disappeared? Sten: Cant really find the source here and now, but the estimation of 10-000-20.000 ME-patients in Norway, are based upon a long-going assumption of prevalence 0,1-0-2% of population when...

Interesting listening to Phil Murray, and so important for everyone involved and especially doctors, listening to the first part and the way to recovery. We obviously need a lot of knowledge on the cellular level and giant investments in biomedical research, but in the meantime the above...

It is really bad. On a somewhat more philosophical level, it is devastating that the government with things like this and the tiny efforts is very close to kill patients hope to. Hope may not be precise, but it's a strong ongoing factor for people, in many ways the only thing to hold on to. The...

Yes, that’s right, hell broke loose. If it wasn’t the case that patients got seriously harmed by LP, I would in principle welcome a study on the method that once and for all would close the case of LP. If we theoretically look away from the fact of serious harm - a proper study, meaning...

Dont forget to raise your back for good body posture and speak in a positive tone, - STOP DOING ME! I guarantee you it will make you «live the life you love», as the quacks like to put it.. quack, quack.

I think the decision is good and right. There is no way you really could have confidence in the institute, that sort of made entry to ME around 2011. C. Stoltenberg and P. Magnus wrote a pretty bad piece in the major newspaper Aftenposten, most of all revealing very little knowledge, not really...

That is a great letter, capturing the essentials. Should be an easy informative read for people not familiar with this insane mess. Well done and thanks. It's been absolutely impossible for doctors with knowledge and patients to get through to the ones responsible, get them awake and alert...

Contact person at FHI/Norwegian institute of public health is Kristine Løvås Jacobsen. She’s done the master: DNA methylation and microRNA-mediated regulation of gene expression in adolescent Chronic Fatigue Syndrome Supervisor: Vegard Bruun Wyller.. The sales agent and promoter of LP...

Thanks @dave30th for keeping pressure on this dangerous undocumented pseudo BS. Among all the important topics to fight, LP is one of the most important. ME-patients (and probably many other patients) should avoid LP for all reasons. So many correctly diagnosed ME-patients have deteriorated and...

Its an article about «The young people (who soon shall take over the world), but all we are talking about is their fragile psychic health». It is of course great that the girl presented with CFS got better. The journalist writes CFS «also known as ME». First the mandatory mistake «CFS» is ME...