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This is an article about a couple who took in a man who was homeless and autistic, and he stayed with them for the rest of his life. Might be a bit triggering or discomfiting, but is also a touching story. It would have been nice to hear Ronnie's point of view - the man with autism - but he...

To add the personal bit I left out of previous post: I am in so much pain at the moment that knowing that UCL geneticists are doing this is so heartening. It's the kind of tidbit that keeps me going.

Fantastic. Thanks so much for sharing this.

Thought of another one. NSAID gels (the ones you rub on sore muscles or joints). Voltarol has perfume but Nurofen gel does not.

Yeah, I'm in so much pain all the time that I'd love to be lidocained up - if it were effective for pain relief, and if those ubiquitous mild adverse effects they mention are indeed mild. But this sample is a real mixum-gatherum The need for a placebo group is so clear - I'd say you could...

:hug: Right there with you.

And hitting the wall entails going around in circles for a while until I finally recognise "I've hit the wall!" So I overexert for a while after hitting it because I'm dazed from the impact.

Just looked up the Byacre ultralight rollator. It sounds brilliant, @Binkie4! https://shop.byacre.com/carbon-ultralight-rollator+color-Carbon~Black+size-Compact.html

Not at all, @Binkie4, it will be useful for others for sure. The rollator sounds like a really good solution for you. It wouldn't be for me because I get dizzy quickly when sitting still, so the rests would do me in! I need to get there quickly and then lie back. I can walk a bit too -...

Just had the guy here doing adjustments. I kept saying "Kitty said it's best if..." So you're famous, @Kitty! Had to stop when I hit a cognitive wall. Couldn't make decisions any more. Fingers crossed the adjustments will help. Husband also now knows how to tweak the things I'm likely...

Moderators explained they cannot copy posts over as they would go in the wrong order.. I've just spent a while trying to copy them over myself and it doesn't work. I don't have the energy to post more. So just follow SNT Gatchaman's links: and then read further in those threads for more.

Night night. I asked the moderators to copy a couple of my posts over to this thread too.

They summarize some relevant points about this in the discussion (formatted for ease of reading):

They also refer to this study of theirs, from the previous year (Jones et al. 2010): Abnormalities in pH handling by peripheral muscle and potential regulation by the autonomic nervous system in chronic fatigue syndrome Worth another thread perhaps? This is from the discussion (formatted for...

We might be able to start with something less intense than CPET. Jones et al. 2011 found higher levels of acidosis in patients (who exerted adequately) compared to controls with repeat plantar flexion. Patients also took nearly four times as long as controls to clear that acid.

Pity they didn't do a crossover trial with injected saline as the placebo. Then we would know if it helped, right? You'd expect the placebo response from an injected pharmacological treatment to be high. Cho, Hotopf & Wessely 2005 is relevant here - they found up to 50% of people in placebo...

I think medical education is indicated, but are not. I think the IOM/NAM criteria would be a useful part of an education module on ME/CFS for doctors, since most know nothing about ME/CFS, so they may help a doctor who never diagnoses ME/CFS to start diagnosing it. But that's about it. They...

Thank you @Binkie4! It's being pushed close to the edge that I don't like. I think I'll be fine with driving close to the edge!

Kerb on the path was definitely the right choice! Had my first tour of the patio yesterday, just pushed in a transit wheelchair. It's all a good bit higher than the grass, 20-30cm higher. We got kerbs just on the path joining two areas of patio, and on the place where I will park the...

Rebecca, a medical scientist with long covid, describes how it affects her and how stressful the change from full-time pay is: https://www.rte.ie/news/2025/1128/1546309-long-covid-ireland/ The transition from one scheme to another is stressful, as you don't know what money you will have and...