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I found stepping away from the biopsychosocial model helpful because treatments based on it either did not help me or did me harm. The hypotheses of what causes and perpetuates ME/CFS in the BPS model made no sense in my case. In terms of the science, treatments based on the BPS model of...

I'm answering this as if it now reads "What triggered your ME/CFS?" as clarified in later posts. A humdinger of an infection, for which I was hospitalised. At the time, I was particularly happy and low-normal stress because life was just working out well in all areas. Particularly good...

Oh that's exactly what you need. That and a bit of luck. Well you write very well, so I'd say your speech will be great.

Oh and now that I think of it, he's going to study maths at Trinity just like you! And economics.

That's wonderful news @Tom Kindlon ! Even nicer as my nephew just graduated from Belvedere. Should be a lovely occasion. I hope you can rest up and enjoy it.

I like these ideas. I did a lot of playing around with the position of the armrests and the angle of the joystick bit before, but there may have been too much wrong to get very far, and I'm not able to do any of the adjustments myself. My hand certainly looked and felt like it was in a very...

So nice to get your responses. Thank you @bobbler ! Oh I think I just expressed myself poorly. What I meant and what they were referring to was the extra arm/shoulder/neck pain I got from the joystick, as in this bit of my previous message: On the test chairs, I wasn't using the soft-throw...

Just updating to say I have not been able to use the powerchair. It causes such extreme pain, on top of the more expected PEM, that it's not possible. I had a procedure done to try to reduce pain - will see, but expectations not high that it will meaningfully increase my ability to use the...

Yes, even the BBC journalist seemed dubious! Do you think increased risk in those groups is plausible? Would it fit with any other well-founded research?

A BBC article on a study that suggests intermittent fasting may have some cardiovascular risks for some groups:

You're reminding me of a nurse who was trying to get me to sit out while in hospital (I have severe ME/CFS and my baseline is lying flat or on two pillows and only sitting more upright for meals and walking in brief bouts to loo, next room etc). She said: "If I'm lazy for a day, I get sore...

Or is the problem not the lactic acid, but what the lactic acid signals - if we can't clear it, and it signals to the immune system to come do something, then do we keep signalling to the immune system that it needs to fix something and that makes us feel bad?

Hm. The story has been that lactic acid is cleared so quickly it couldn't cause muscle pain/fatigue. But what about in ME/CFS, where it is not cleared quickly? See Jones et al. 2011 https://pubmed.ncbi.nlm.nih.gov/21749371/ "The CFS patients in the normal PCr depletion group also exhibited...

I liked this guy's explanation: https://www.lboro.ac.uk/news-events/news/2024/july/lactic-acid-games-paris-explainer/ Didn't somebody find that our inorganic phosphate was a bit high recently? I remember thinking, huh, that's actually one of the few things that has shown up on my blood tests a...

And the O' Dowd et al. 2020 early intervention study didn't go well. 8/28 in the intervention group did not complete 6-month questionnaires. Acceptability was low: and the intervention was not effective:

Yes. Not with every episode of PEM, but often enough that I have christened them: pseudo-colds.

I know. The only relevant study I know of, Schachterle et al. 2004, frames it similarly, all about fearful females that can be reassured by physicians. I wonder do men with ME/CFS who are considering fatherhood get a mention in Spickett's book? Oh Beth, I'm sorry. I would feel the same if...

Females of reproductive years will also be anxious about keen to know whether they'll be well enough to look after their children. Not just if they can be used as a vessel for them.

I've only experienced this once - my pain, and only my pain, was turned off by a tummy bug. It was glorious, as I had been in the middle of a pain flare. But I do wonder if it's actually part of a normal process - because something similar happened to me when I was healthy (albeit someone who...

Yeah, it's interesting that the aftermath you've described in other posts seems to be the opposite of the aftermath for me. I absolutely have to lie down and rest them and that eases the fatigue/burn (somewhat). But it seems like the central issue is the same.