Search results

Oops. I see that now on the clinicaltrials listing. It was not included in the new webpage or the email that the researcher sent me. I wonder if the criteria changed or if it's just a discrepancy between pages.

Yes, I understand completely. Apparently Fallon's group at Columbia also does clinical assessments with patients, which is interesting seeing as they are also on the forefront of the research. In an ideal world I'd like to have one of the researchers from this paper attempt to culture the...

No, not yet. Waiting on some more testing to see if my results have changed after 6 months of continuous treatment.

Is this with an antibody titer or direct visualization? Do they offer anything in terms of treatment?

It's hard to tell with tick-borne encephalitis, but yes, those symptoms could describe mine.

This study has been on my mind a lot recently and I thought maybe people want to discuss. This is personally of interest to me since I test positive for this parasite. I am also a member of some online patient groups where nobody reports being able to fully eradicate it. From my observation, a...

Establishment of a continuous in vitro culture of Babesia duncani reveals unusually high tolerance to recommended therapies (2018, Abraham et al) Open access, full text: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6311517/

New tick found in north east Scotland From Twitter - new trick in Scotland, never found in sheep.previously babesia venatorum https://www.northern-scot.co.uk/news/global-scientific-first-as-parasite-found-in-north-east-sheep-186588/ @duncan @chrisb

The trial coordinator got back me to me super quickly. I don't think I am a good candidate for various reasons (I have already tried the drug, being the foremost) but I would consider participating otherwise.

Maybe an incorrect assumption on my part. but i was definitely expecting some sort of update or results by now, not for them to still be recruiting.

It looks like the Fallon trial is now recruiting for remote participants. I wonder if this is only because of COVID, or if they had trouble recruiting for the study in-person. https://recruit.cumc.columbia.edu/clinical_trial/1661

There are a lot of people suffering from chronic Lyme Disease who are banking on Azlocillin being a silver bullet cure. I am pretty skeptical. I am really unclear as to why Azlocillin was chosen in this study, besides the fact that the researchers have a patent for its reformulation into an...

I read some chapters and skimmed others, but it was an enjoyable read and Jamison is a great writer. re: treatments, quoting the book: I would attempt to summarize the Dr. Peterson chapter(s) but I don't want to get it wrong. I left with the feeling that Jamison was unimpressed, and the...

It seems like there are two topics at hand here, 1) the original request for a doctor that can do a remote consultation, and 2) a discussion of Jay Goldstein, who from what I've read online, certainly seems like an interesting guy and worthy of attention. As for the original request that was...

Made even more confusing by the fact that "Kaiser", the HMO, is actually three distinct legal entities: https://en.wikipedia.org/wiki/Kaiser_Permanente Gotta love the American health care system.

A few years ago when I had lower back issues, they basically told me to bugger off without even looking at my back or doing any scans. Now I know the issue... I was already taking antidepressants!

I’m glad that the era of trying stimulants on us seems to be over. (Apologies in advance if I am jinxing it.)

This article reads like they started with good intentions, interviewed Dr. Holladay (who from the looks of his website is someone who understands ME/CFS better than 99% of doctors out there), but then in the process of writing the article and then editing it for the web, it just devolved into...

Maybe this is a basic question, but how do/would they do a blinded trial when the beneficial effects seem to be very dose dependent?

I am surprised that this is not even given mention in the article, seeing as it appears to be the case with every patient report I have seen.