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Whatever the initial intentions were when CBT first became a thing, I fear it's now a confusing mess. To be more medical and scientific then one would assume that involves very clear ideas about who gets what type, methodology and so forth. In the hands of the BPS (& perhaps others I am...

One way they could make significant saving is by the administration wasted in tormenting vulnerable and sick people. I would love to see how much on average the cost of administration per claim has risen in the last 5- 10 years. I can't remember the source but I do remember somewhere hearing...

Too right. If the peer reviewers and editors can't bring themselves to.apologize maybe they should put their hands in their pockets at David Tuller's next crowd funding as he has had to do part of their job for them?

But only when the subjective data tells them what they want to hear or can assume. When the subjective data is the patient pointing out that the treatment has harmed them..... Suddenly there are GRADEs of subjective data because it doesn't all appear to be equal.

The marked contrast in how I feel when those endorphins (or possibly adrenaline? Or both?) kicks in makes it even harder to resist keeping going. It feels so amazing to feel well, good even. It took a lot of self discipline to stop even when it started to dawn on me that there would be a hefty...

From.@Dolphin's post #872 above Bolding mine. Err.....aren't changes to or loss of taste and smell very common covid symptoms? So they could hardly be termed as In fact none of the symptoms listed would be all that unusual in an illness with a fever,except maybe IBS.

:hug: @ Rosie. That's the trouble, isn't it? It's impossible to observe your cognitive decline until it's happening and then the chances are our memory of it won't exactly be precise!

Not meaning to be contrary @Rosie but my point is that here our experience differs significantly. That difference is meaningful because it means this isnt something we can use a guide, if you see what I mean. My experience is that my ability to something I was extremely good at and very used to...

I agree the past is in the past and, as long as it doesn't cause problems in the present we should move on. When Simon Wessely tells us to "move on there's nothing to see here", or some other BPS person says "oh, we don't do that anymore" we don't agree to let bygones be bygones because...

An organisation who promotes pacing up in the way AfME have are actively causing harm either through patients pushing themselves when they shouldn't, or by forcing them into confrontation they don't need with employers, health care professionals and families when trying to manage their condition...

I cannot respect an organisation that states one thing and then says something else in documents that harm patients. If AfME were to put their house in order then I would be supportive. It's a charity I don't expect perfectly aligned views on everything but failing to correct advice that is...

As @Trish said, efforts were made. If they're moving in the right direction I'd happily support them in that wherever I could rather than throw tomatoes from the side lines. The trouble with it is this - Sonya gives a good talk. She says all the right things and comes across to me as...

I had a conversation recently with someone whose daughter "recovered" from ME. the daughter contracted glandular fever in her late teens and it took over a year of being virtually bedbound, followed by several years of being very careful. This girl was very lucky and, rather than be put off...

Interesting @Rosie. For me this is a very marked deterioration from my best (least worst) day to when my cognitive function is in decline. It's not just slower. The ability completely disappears. The word finding business and vocabulary does get worse but is much worse than it was even at...

It wasn't for me either until I got ME. I'm still okay with it until cognitive decline kicks in. Telling left from right, especially when facing direct of travel, isn't so bad. I was used to map reading with a glance of a map open on the passenger seat of a car. I could be in a strange place...

I wonder if inability to reverse left and right might be another. For example if I walked down my road and number 12 was in my left & I met someone walking up the road in the opposite direction looking for number 12, I become unable to tell them it would be on their right as they walk up the...

Sure, but we had discussions with them on here last year. Could have been the year before...definitely well after Chris Clarke. To move on from what they believed then and any mistakes that were made they need to be very clear & consistent about what they believe now.

Weird. Neither of those articles really describe the processing problems I seem to experience that then give rise to memory or attention problems. I can be alert and paying attention, the data is coming in and I am aware of it but.....I can't utilise & manipulate it. By manipulate I mean...

Not really. Some attempt was made to sort out some of the documents. AfME reps did sign up here and did enter into some discussion with us. A leaflet was withdrawn, I think. Unfortunately, there didn't seem to be much urgency and they didn't really seem to grasp just how problematic the...

What happened with AfME and the PACE trial happened. If they had been more proactive in clearing up the mess they contributed to I think most would be prepared to forgive and move on. However, as we know some of their information leaflets are still very problematic and are probably causing harm...