Search results

I understand Phil is being careful and responsible in reporting his experience. My knee jerk reaction to improvement stories is nothing to do with Phil or his experience. He has every right to speak about his own experience and I'm sure many will find that helpful and hopeful. I don't - &...

Bolding of the f word mine. As far as I'm concerned this is completely irrelevant to me if it's about management despite "fatigue". The focus on fatigue in the abstract doesn't give me any confidence they have a clue. In fact, having my suspicious nature honed during the long years of illness...

I agree with a lotof what you wrote @Londinium however - This might have been true 25 or 30 years ago but I simply cannot see anyway that anyone with an intellect of a house plant or above can genuinely not had the curiosity to see what has happened to patients in the long term - the majority...

Unless things have changed significantly recently - & they might have thanks to covid - a lot of docs have no idea what PEM is anyway. A few years back when talking to a GP about something else I mentioned PEM. Then asked him if he knew what PEM was, he didn't. When I explained he said he'd...

Pre ME after a good night's sleep I would wake up feeling good and raring to go. Now, it seems the more sound my sleep, the worse I feel. Some of that might be due to fluctuating thyroid issues - when I need to increase the dose I sleep much more soundly and for longer. Naturally, I will...

I'm not as stunned as I should be. I'm too busy trying to work out if that's just taking the proverbial issue to how far they can go before someone puts a stop to it Or epic lack of self awareness, and awareness of the issues their patients face. I'm still not convinced some of this...

I'm really only familiar with what went in from the mid 90s. I do know that Ramsey, Behan and Dowsett did a lotof work. I think from the Wessely era on though therev was a bit of a vicious circle from our perspective. I think this wasn't always intentional & wasn't necessarily bias or...

"Peter White, a volunteer with the charity group Forward ME, said funding was necessary to investigate the biological reasons behind ME, but much funding was focused on psychological research because people did not know where to begin on the biology. Yet this was because nobody had really ever...

If Wessely et al were serious about anything - their hypothesis, rigorous research - they had ample.time and .opportunity to do something about it. They were convinced ME was due to deconditioning or abnormal beliefs fed by symtpoms of deconditioning. So why not study deconditioning? Why not...

I agree with @Trish, especially as you suspect there might be some neuropathy. Covid permitting, it might be helpful for the doctor to actually see it and check the surrounding area. So they can establish what caused it - an injury you didn't feel at the time it happened or an issue with the...

Great letter :thumbup:. An awful lot of work has gone into that..and all the rest if the stuff for NICE. I am extremely grateful for all of the hard work that has gone on behind the scenes by the stakeholders and everyone else involved.

There is a Peter White who is a patient who has made afew good comments on twitter and in response to various things on social media. I don't know if it's the same chap though.

I suspect fluctuations in oestrogen and progesterone hormone levels might have an effect too. Especially for those who have a history of hormone imbalance.

Ah well, when Dr Phil says GET we have no way of knowing what he means by GET do we? He claims he doesn't recognize the GET other doctors' patients describe. We can't even safely say what he meant by GET a week ago will mean the same thing next Wednesday. I'd call it a pile of manure by any...

And if he was genuinely interested he's had ample time to investigate further and attempt to prove that. All fatigue is the same is simply a convenient hypothesis. Something that can be used to cut to the chase to the treatment......the treatment that doesn't work. I simply cannot understand...

It's that it's so blatant that really annoys me. Bad enough when people are treated like idiots but to so blatantly treat them. like fools is just rude. I really wish it were unbelievable that they get away with it but ........ sadlyit isn't.

The conflation of chronic fatigue and chronic fatigue syndrome is at the core of the BPS strategy. I've had GPs repeatedly call it chronic fatigue even though I immediately corrected them and said it's chronic fatigue syndrome. Until I finally snapped "stop that!" . I got a look of shock...

I reckon most of the time the GP will have formed an opinion based on presentation and who you are referred on to will reflect that i.e. whether it's rheumatology or neurology or straight to IAPT. The snag is once referred to IAPT you may never climb back out of that particular waste basket...

I don't believe that's true anymore Considering news reports on climate change, Brexit, topics to do with migration etc lots of people get upset, ranty and shouty. I agree it can sometimes distract from the point they may be trying to make but it's increasingly the norm. In fact at times I...

"NHS chiefs insist patients’ views are recorded when therapists are not present." What's that got to do with the price of fish? I rarely saw my boss face to face. He still existed, expected certain standards from me and was a part of my appraisal process so even if he was in a different...