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This is all about the self serving business of keeping people sick, keeping other specialities that might be able to help away and themselves on the gravy train. The whole gastric ulcer/heliobacter business all over again. At least in those days they came from a starting point of ignorance...

I find this strange - perhaps it's the wording or just my brain. It seems to assume that all syndromes are known or that everything, even if it's something never seen before, should be shoehorned into the boxes where everything else fits. By all means compare & bear in mind lessons learned...

:banghead: Again with the idea that everyone who is "young" is healthy. What about all those who are in age terms low risk but live with long term health condtions? Diabetes, asthma and so on. Several of my husband's work colleagues who are only in the 40s have heart conditions, one guy had a...

Ah. Okay. What we used to call customer service - the customer could be an external client or a colleague. The golden rule being even if you can't help the customer should never be left feeling negative about the service. Even if that service is simply redirecting someone whose called the...

What does this mean? I have no idea what a touch point is, let alone an emotional one. If it means things people were emotional about........ I'd think suggestions for services should be based on identified need rather than emotions? Possibly I'm being very stupid. What do the authors mean...

Just that acknowledgement is progress. If only we could get the likes of Sharpe, Chalder, Moss-Morris et al to read the paper. If they could only find the mental flexibility to wrap their brains round this concept.

Yet if you pitch up at most GP's clutching your research and having opinions, especially ones they don't like, then I think most patients will be told to stick they're accountability where the sun don't shone. Edit - In a way I do get the idea of accountability. People should, given the means...

I misread this as Twenty-two adults randomly diagnosed with CFS were assigned to experimental groups. My first reaction was :eek: and then I, well it's as about as good as the modified London criteria, if not the Oxford criteria. Frankly, if I was somehow trapped into this kind of guff, I'd...

Yes. This is what I've been told but I've heard doctors that ME patients won't take them because they're described as an anti depressant. Ignoring that it's the side effects from taking them that are the issue. Mind you, I also had one doctor who wanted me to try an SSRI (can't remember which...

I've tried all sorts amitriptyline, SSRIs, NSRIs. Prescribed for both pain and sleep problems. Couldn't get on with any of them. I might feel a bit drowsy temporarily and then suddenly wide awake and absolutely exhausted. Very prone to "hangover" effects even from drugs that supposedly...

:hug: @arina83 Yep. I grew up in a community where you always helped each other out, respected each other and were considerate. Whether you need a hand or not, life is a lot better when you know people around are supportive. :mad::mad::mad: Unforgivable! I admit I am very, very fussy...

It's a hard place to be @arina83. Too sick to be able to work without payback and not ready psychologically or otherwise adjust to or make the leap to disability - if that's the point you're at. I don't think anyone here necessarily advocates staying in bed all day - unless you actually need...

I struggle to understand why agencies worldwide have allowed the idea that only certain groups are vulnerable and the rest won't be affected - the influence of behaviourists possibly? Sure in these days of social media influence it wouldn't have been such a terrible challenge to make putting...

I have no easy answers for you @arina83 but would agree with @Trish's suggestions. Being part of a couple vs being single with ME is something that's come up a number of times over the years. There are plus and minuses on management to both. I also know people who ended up divorced and losing...

I'm waiting for payday so haven't donated yet- big dental bill this month :(. So about ⅓ of the target raised in ⅓ of the time allowed to raise it. Hopefully, there'll be plenty more like me who will be donating but need to wait a week or so for funds to come in.

For me the role of psychology goes way beyond the good vs the bad. There's the question of when is it appropriate - if for example you identify that childhood poverty might affect a person as they develop to adulthood then is it appropriate to simply focus on the psychology of the individuals...

I have seen that played out on Facebook pages so many times. Any attempt to express a different opinion, however carefully or politely & instantly the accusations of bullying and discrimination fly. It's okay for them to label me, you or someone else. It's not okay for you to question that...

I can't speak for Ninna Jonansson but I have met this kind of attitude before both from a family member and outside family. Particularly some ME patients I met in the early years and also online. Without any investigations or desire to investigate any physical or other causes of health...

It's a fantastic marketing ploy this whole PTSD business. If you can label someone with any poorly understood health condition & without a clear prognosis has having PTSD then you can divert them into mental healthcare they don't need, gaslight them by denying their reality and trying to impose...

Sean O'Neill I appreciate the guy's input - we need all the help we can get but I wonder if he realizes the true scope of the matter here. It's a bit like seeing a tree & think all that you see is all that's there - nope -hidden away are big roots branching off into increasingly smaller roots...