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I think any healthcare professional in this field who claims "hurt does not equal harm" should have to provide proper evidence. How do they know? Is there any way of telling up front who will merely be hurt and who harmed? Exactly what definition of hurt do they use and what definition of...

"Recent developments in our understanding of functional neurology are translatable to other functional disorders and have laid the groundwork for future research opportunities that for foundation trainees can contribute towards." to board the unfalsifiable gravy train.

I think the article raises some interesting points but I think there is a bit of conflation going on too. It isn't unknown for younger people to suffer ill health, need a lot of care on an ongoing basis for many months and sometimes years and then die. It's quite natural to want to care for...

I think it should be applied to everything. I understand there are many conditions where we just don't have a clue. Where we either do nothing or we try to alleviate some suffering. Where we are trying to simply alleviate suffering until we know more then it is just as important as ever to be...

:laugh::rofl::rofl:

Equally, as a hypothesis that could be harmful for some. That's how I tried to manage my ME once I understood the pattern caused by PEM as I experienced it. I sacrificed a lot to keep physical function up. However (& I'm sorry folks I know I bang on about this) we know that we can already...

I hope this.isn't too far OT - re thyroid It is tricky and I found that when allowed to make tiny adjustments myself (while in the care of an endo) I would always put myseilf in the same place to get symptom free - TSH at the bottom of range and T4 at the top. I'm lucky that T4 works for me...

I don't know if this is of any interest ir relevance to you @Michelle as it's about BPM rather than blood pressure. I find that when I need to increase my dose of levothyroxine my BPM drops well below 50 at times during the night. The nights it does that I feel extremely unwell. I have no...

My worry is that if it isn't reined in soon then other services, seen as being more expensive because they actually provide expert medical care, may be closed in favour of IAPT. Once they're closed it will be very difficult to get them back. Expertise may be lost to the NHS if consultants move...

You're quite right. Personally, I think the best person for the job is more important than what sex they are. How a team performs is more important than how it looks. Sure, in an ideal world a team reflects some ideal balance but the most important thing is a team that works. I do think a...

They do have some blokes on the team though the majority are women - https://www.actionforme.org.uk/get-information/about-us/our-staff-team/ I reckon if it were all blokes in the picture then similar comments would soon be made.

:hug: your sister sounds like my sister!

I've been on the other side, caring for someone else and left feeling like I had to hide it when I wasn't feeling well. I have had the "well, you're lucky, you'll get over it" attitude when I needed to rest because I was blinded by a migraine having been up most of the night looking after the...

I think that's certainly the way they would like to peddle it - them helping those poor delusional folk who don't really deserve but it's not their fault they have no backbone or moral fibre. The arrogance is certainly there. What I actually see though are pigs at a trough.

He turned up at a yoga retreat I was on years & years ago. The place ran retreats for different groups but you could also just call and book to have lunch. He struck me as being evangelica which frankly puts me off anyway. He did spend a lot of time talking to one or two people though...

:hug: This is how these guys operate. People are so powerfully motivated to get well, they have such a vested interest that they will put themselves through things they otherwise might think twice about. We had to do a fair amount of motivational training at work - it was a big thing at the...

Me too. When your function level drops to a certain point there are times when it's mental vs physical health. I don't think that's a luxury, it's a necessity. When you're in pain and living under such imposed restrictions with most of your usual outlets for stress relief, fun and...

wouldn't it be so lovely if we could just take up a hobby -like exercise - when life with ME gets either too boring, or too difficult, or both at the same time?

I don't really believe that we are hated. It's actually worse than that. It's a complete lack of respect for us as human beings. It's possible to have strong negative feelings toward someone but still have some respect for them. Even if it's only as an opponent not to be taken lightly. The...

Unfortunately, this is not universally true. I thought I had figured out my PEM boundaries and exercised within those boundaries. My condition gradually deteriorated over years. We dont know what PEM is and it's very likely that the symptoms we call PEM are downstream of the actual problem...