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Not at all. Your words just made me realize something which I don't recall seeing mentioned before. I wonder is it's something we could use to stop health care systems referring to such therapies.

Don't get me wrong @DokaGirl - I'm not saying the current system.works well, or even at all. However, there is some notional professional body in place. A body that can revoke your license to practice should some gross misconduct take place. When dealing with the likes of an LP practitioner...

This is one of the building block of the problems with outcome measurements. Validity of questionnaires The way results of questionnaires are interpreted as @Adrian said above Objective measurements, lack of pre and post long term follow ups.as @Hutan mentioned - plus of course just which...

I would also suggest that this type of person might be a little more likely to find themselves in a situation where they burn themselves out and simply having a long rest away from running around pleasing other people will automatically make them feel better. This is part of the problem - those...

Yes, but it goes beyond that. If you are unhappy with the behaviour of a doctor, nurse, counsellor, dentist, physiotherapist you can not only make a complaint to the health authority who referred them, complaints can also be made to the professional body they belong too. Those professional...

I appreciate what you're saying here - they may not do that anymore, the trainer maybe wasn't very experienced, even though that behaviour shouldn't have been considered as acceptable by anyone. However, I think it highlights another aspect of the cult like behaviour, the built-in bullying &...

Thank you @Parsnip for sharing that. I'm sure there will be many families who, in hindsight, realize they have been taken advantage of, used as a means to gain access to a vulnerable person. It is a dreadful experience for the patient but I can also see how a parent, guardian or carer might...

There's another thing - please forgive the slight aside. In the ME world, at least this corner of it, while most of us have the shared objectives of research leading to effective treatment we don't always agree on the finer details. So we discuss them. Without name calling and strawman...

I think you're being over generous there by putting the kindest possible interpretation on it. Even if this person has over estimated his ability, the people around him should have spotted the problem by now. Unless he has somehow managed to hold them all in some kind of thrall & persuaded...

Edit to insert quote- It also conveniently introduces another lot of bias because when most people join a trial they do it because they'd like to try the treatment. So if they say they improved on their own, even a little bit, it might reduce their chances of getting a go at the treatment...

Wait. What? Did this guy have a straight face when he was doing that interview? Once again I'm struggling here to believe someone can genuinely have a blind spot the size of a large planet. If Kennair genuinely can't see the problem then he really shouldn't be involved in patient research...

Is he for real? It doesn't matter what the therapist's intention is. If a treatment is effective that means it has an effect. Hopefully, applied correctly to the right person, it will have a positive effect. Almost assuredly, incorrect applied or applied to the wrong person it will be...

That's the whole thing in a nutshell. If you've doing it properly you must always say you've recovered. The only measure of outcome is by questionnaire that asks about recovery. As a scam this wouldn't work on the most naive of ten year olds. It simply is not possible for people not to see...

This, for me, is the killer. Even as a more severe pwME. Sometimes I just can't push through I feel too ill, will fall over or whatever and that's that. Sometimes, I can just manage to do something small. If I do trigger that adrenaline storm, I feel much better than usual for a very brief...

Thanks for that link @Kitty. I'm going to give this a go to see if it helps get rid of those infuriating earworms. Those maddening little snippets of music my mind plays back on a loop.

I think the English language is just too slippery sometimes. I agree with this. And with this. I never lose my motivation to want to get things done but often feel too ill to want to do all that involved in getting them done. i want to have a shower but feel too ill get clean clothes out...

Yep. .Drives me up the wall. I simply cannot switch it off.

From @Sly Saint 's post above I don't know if anyone would like to have a go at reporting them to advertising standards. I haven't the spoons at the minute. https://www.asa.org.uk

I think the roots of the kind of concept of bias we're grappling with here go back even further. Ever since I've been sick the information publicly available in all the places a patient will look first - NHS, MEA, AfME - all give the idea that most patients will recover and pacing, or somehow...

Or we could just call it what it is.....loading the dice. Loaded dice bias?