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Yes. Commit a serious crime and you can be free to wander about for months or longer. Commit the crime of having ME and you can be whisked away on the say so of someone who knows little or nothing about you.

Just checked the twitter thread. No news.

Yes, I agree. I also agree that we might get a little further down the line and be prepared to be flexible enough to change tactics as need be. It might well be that a sensible conclusion would be to consider a PI at a later date but the collaboration & work up to that point will still be...

Good point. This is an area where Wessely has worked his magic again being the goto "expert" as one of his many hats is epidemiology. Funny as he's spent the last 2 or 3decades completely failing to observe and record even fairly basic & obvious things that might have demonstrated useful...

I completely agree. Back in the days of "honest" science, how many discoveries were made by accident though? An interested researcher realizing that although their experiment didn't show the expected result, something worth further investigation was found along the way.

I agree a Public Inquiry would be hard, there is a big chance of failure (if there weren't would there be any need?), there are powerful & influential people against us etc. That includes the likes of the SMC, but because the likes of the SMC are included something at the kind of level of a...

Once more I feel language is too loose and slippery. Unrefreshing sleep - you could take it to mean - Even if you sleep & no matter if you get many hours of sleep under your belt you still feel extremely ill. I would agree with that - I think I'm not alone in saying I feel worse immediately...

Daft mistake to make but all credit to them for being honest, owning up & putting it right.

Yes. IM's employer is keen to have people start going back into their offices. Especially now that many of them have had both jabs. Of course, they also want them to sign a form which indicates they have read the guidelines the company wants them to follow and also a waiver in case they fall...

And this is one of the primary symptoms of the problem of false illness beliefs. Those that have false illness beliefs are wholly wedded to a single treatment. A single treatment that can treat almost anything. Just like Chalder et all, Landmark has a cure in search of a problem it can fix...

Absolutely, But often when one tries to discuss this type of suicide as a completely rational choice the conversation is turned, by the listener, into a conversation about how to make you feel better, ignoring the fact that "feelings" have beggar all to do with it. It's about circumstances...

I think there's also a fundamental laziness that creeps in. If you aren't all that invested in what you're doing - it puts food on the table and pays the mortgage - and everyone else thinks "xyz" then "xyz" is the way to go. No effort on your part, you have the defence that it's just what...

@Perrier. I initially "liked" your post to acknowledge it but that really doesn't seems appropriate. Then I put a hug & they're too smiley. I can understand the need to repress etc. Talking about normal human needs that are not being met only to discover you're being offered no practical...

I agree that having appropriate medical education and services in place are a priority. This is only one aspect of life with ME though and how those services come about and are implemented in the field is dependant on a lot of politics that filter down from above. When we look at the...

Sooner or later this will have to be addressed though. I agree it is something that woukd have to be handled well & possibly this is where involving professionals come in. The reality is the treatment the NHS delivers is based on information provided about efficacy, safety, value for money and...

Perhaps I'm in a minority but I don't see any need to "go after" the NHS. For me this idea that ME patients are all anti- NHS or anti- doctors is on a par with us being anti-science. As someone who has had bad experiences at the hands of NHS personnel thanks to.my diagnosis, I believe that NHS...

I've mentioned this in another thread but LP therapists are not members of any professional organisation that has a charter to oversee the quality of treatment offered by & the conduct of their members. Most UK healthcare professionals are members of such bodies and have to be to practice. In...

My personal experience goes against this when people who apparently previously thought I had MS, or some undiagnosed thing found out I had a diagnosis of ME. I have literally had people become verbally abusive and very aggressive. However - This is an excellent point.

One of things that needs to be addressed (& I'm not sure quite how) is this idea that having a debilitating illness where there aren't any definitive tests is a shirker's charter. I don't know exactly when this idea arose but it is something that seems to be automatically assumed by many. It...

As Whitney says: "I would like to ask you to not speculate about what this drug is or hype it up into more than an experiment and possible treatment. You will never guess what it is and if you did you could do great harm to the availability of the drug by taking it in the wrong way and hurting...