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Jolly good. None of this "but I'm so misunderstood" whinging tactic adopted by some as the default strategy when they are called to account. Trying to play the victim when their words have caused no end of suffering to others. If they now believe something different, then it's time to set the...

I listened to a little bit but don't manage audio very well...... Like @Peter Trewhitt, I am loathe to criticise something which is miles better than so much of what's gone before. I can understand they may be trying to address a wide audience with a large variation in severity. However, we...

Is there anyone in a hospital who isn't fatigued? Even when you're just visiting time seems to pass differently in hospitals. Long before I had ME I found spending time in hospitals tiring even though I wasn't sick. The staff will all tell you they're knackered & usually they're so busy...

From the blog - during the LP the author was told " if you concentrate on your symptoms all the time, then you're going to keep having them. " Yet when I have a migraine it will get to the point where I can focus on nothing but the excruciating pain no matter how hard I try to ignore it and...

Sometimes it really.does look to me as though the NHS is being managed to fail. Lots of time and energy for reorganising things so they aren't noticeably any more efficient than before. It seems to get harder and harder to pinpoint exactly who is accountable for what & make 'em take...

I think a lot of adult patients do too. Especially when many of us have had doctor's words put in our mouths - sometimes by docs with the very best of intentions. My cognitive problems were put down as difficulties with memory and concentration, presumably secondary to "fatigue" for years...

When pacing was explained to me I was told resting is exactly that resting, not watching TV, flicking through a magazine, reading or listening to music. Those are things people might do to relax and a healthy individual might find those activities more restful that their usual ones but it is...

She was very clear a phone call.wasn't forthcoming by the end of the conversation. It was also made clear that if she was that disinterested in her daughter's wedding then it was time she pushed herself to get in touch with her doctor. If memory serves I made the point that ME also meant that...

Yeah, I would say so from my experience. I had someone with depression who wanted me to phone them and make sure they got out of bed to go for a fitting for their only daughter's wedding dress - a wedding I wasn't even invited to - tell me that people with ME just didn't try hard enough and...

Possibly because most people will have been diagnosed with CFS rather than ME & maybe will attract a wider audience?

I reckon so. My first dog would try to usher me upstairs for "our" nap. My second dog ID seemed to know too. IRD less so, but then he was already 5 when he arrived and what with home working being a thing spends more time with my husband than with me. The only thing is, they could be...

I wonder how she would feel if she had been sent for IAPT instead of finding herself in front of a doctor who could treat her? Chances are that's what would happen in the UK. So, if she had a choice, would she want an FND or MUS diagnosis with whatever "treatment" that entails and remain ill...

If I recall correctly VES called for a unified approach & not necessarily a united one. I think I unified approach is probably the best we can hope for & that various groups put aside their differences to work toward a common goal. I'm not even sure we can achieve that to be honest. I don't...

I completely agree. Stating something as though there is high quality evidence for it where there isn't does us no favours.

Maybe, junior acolytes. People who want an easy ride on the coattails of the more successful "mentor". Those who want to think & analyse for themselves, no. Those from different fields where they might have had a tangential interest but looked at the sheer volume and considered it to be...

From my perspective these studies when looked at as a whole have one extremely effective purpose. They demonstrate that some people are extremely busy achieving nothing. However, because these people are so busy and prolific producing what amounts to printed loo roll, it can be said that a...

The other issue they're ignoring is that even when the young adult eventually appears to more or less fully recover there is a possibility that they may well be struck down again in their 30s. Or not. We know anecdotally that some pwME struck down in their 30s had some infection, possibly...

I was discussing what LP was with IM today. I'd mentioned it before and he knew what I thought of it but didn't really know what it was. Just thought it was something else that didn't work. He genuinely thought I was joking or deliberately explaining it in such a way to add ridicule. I...

I don't doubt that psychiatry has been beneficial to some, I also don't doubt the need for sectioning on occasion. As @Jonathan Edwards points out we cannot say for certain that psychiatry willnnever have a place in treatment or research for ME because we still do not not exactly what ME is and...

Rather that than sectioned, kept in a wholly unsuitable environment and given "treatment" guaranteed to make matters worse. Sadly, sometimes there are worse things than being ignored.