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Good idea! Unfortunately, I won't be able to contribute much to this thread myself, so any input and discussion much appreciated. If anyone feels up to have a look at the Cochrane reviews, that would be great, too. I did a search a while ago on reviews on exercise for fatigue in MS. That...

Example of a systematic review of trials using health care utilization as an objective outcome That's not a good example because it didn't investigate effects on a symptom or on disability, but on an emotional state -- reassurance. I am not sure if health care utilization usually counts as...

As the title indicates. Looking for examples of such trials. Systematic reviews (*) of trials that excluded (or downgraded to very low quality) non-blinded trials that used only subjective outcomes as primary endpoints also welcome. Suggestions on amendments to the threads' title or topic...

(or both...) -- Thanks, Adrian. Very important point.

see also the News from Germany thread (including link to the original article ) :

Edzard Ernst added a comment on his blog article from last year: https://edzardernst.com/2020/06/the-lightning-process-implausible-unproven-hyped-and-expensive/#comment-131875

Am too slow to catch up with the thread and wording my points takes too much time so apologies for my odd posting behaviour. When re-reading through the therad a bit there are so many points others and I have made already and I think still apply. On the other hand, ist seems that the links to...

see my addition here. I agree the editor's reply to the comment is appalling. I think it would be good if forum members could collect some points about the review authors' work that we would like to discuss and of which it would be good to know the authors' current stance. Editedt to add: I...

Apologies for not checking / mentioning the dates: The comment is from 2000, Henschke joined the author team in 2010-- now edited my post to point to the dates: didn't check the revisions so no idea how the author team from 2010 (when Henschke joined them) responded to it, also don't know...

Comment from 2000 on the review Behavioural treatment for chronic low‐back pain quoted above -- didn't check the revisions so no idea how the author team from 2010 (when Henschke joined them) responded to it, also don't know Henschke's current stance on that: Comment on the Back Group...

Apologies for self-quoting. Searching for references to Barry's posts I stumbled across a somewhat related post that seems still to be relevant: The addition about the review authors was made back then.

To falicitate sharing: https://twitter.com/Nina_Steinkopf/status/1400833312378261514 https://twitter.com/MECFSNews/status/1400826842932731908

Not sure if I'm the target group and maybe don't feel up to be an ambassador but filled in the following: A bit odd, I'm afraid: I mainly use e-mail to ask people to spread content both via e-mail and social media -- mostly facebook, but also Twitter.

2 Expert reactions / SMC London https://www.sciencemediacentre.org/expert-reaction-to-new-ons-data-on-prevalence-of-ongoing-symptoms-following-covid-19-infection-in-the-uk-4-june-2021/

Thanks. Just to clarify: I didn't worry abouth Faulkner's understanding. Just curious about his work on ME research / politics. Also, wondered whether @Hilda Bastian is aware of the links and even positions of some trial investigators within insurance companies, and that Peter White and others...

Might be relevant for the Cochrane review/ IAG thread? https://www.s4me.info/threads/independent-advisory-group-for-the-full-update-of-the-cochrane-review-on-exercise-therapy-and-me-cfs-2020-led-by-hilda-bastian.13645/

Just tried to save Clare Gerada's Tweet to the Internet Archive -- but not sure if it worked? https://web.archive.org/web/20210604122527/https://twitter.com/ClareGerada/status/1052636273180139520?s=20 edit: And now need a break.

Yes. I posted the document here because it may indicate that EC's research topics seem to be influenced also by Bristol Uni's infrastructure. Not able to assess the quality of the appendicitis study and EC's role in it, also not able to assess the concept of the "hub" within this and also EC's...

I have to admit that I have yet to read Faulkner's In the Expectation of Recovery. Faulkner, George (2016), In the Expectation of Recovery, Centre for Welfare Reform, https://www.centreforwelfarereform.org/uploads/attachment/492/in-the-expectation-of-recovery.pdf Also, I don't have the time...

Just would like to add that it's both worthwhile that they pause their public involvment for a very important enterprise and a pity that their pause is taking longer than planned. I miss their comments here.