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Thanks for posting. David Tuller: "Whatever these conditions are called, it has been my observation that investigators who focus on psycho-behavioral treatments for them routinely adopt highly problematic and sometimes even fraudulent practices in their clinical trials and epidemiological...

If I remember correctly, Tovey finally agreed with the authors to let an arbiter decide about the conclusions regarding the quality of evidence before he left. They also agreed on the person who should act as arbiter. So it seems according to Cochrane rules Soares-Weiser had not much choice but...

Perhaps that's the reason why the authors didn't include any trials on exercise for CFS or ME/CFS in their review -- despite promoting a 'transdiagnostic approach to fatigue'? So that they still can assess the most included studies on other chronic illness (applying the same questionable...

Not sure about the whole comment, but the 'balance' bit seems most problematic to me, too. Balance is not needed to have patients' wellbeing at one's heart. Perhaps NICE was surprised that listening to well-chosen patient representatives actually helped assess the evidence, and this evidence...

Moss-Morris also missing from the list, but a paper of hers referenced as evidence for the "negotiating" bit: Supplementary Table 3: Other trials of graded exercise therapy And Vogt fromm Recovery Norway -- I think hasn't shown up recently in any MUS/ LC/ ME related context?

I think investigating these 9 patients' illness / diagnosis trajectory, including reviewing the diagnosing clinicians' thoughts and decisions would be worth a paper too...

As I edited my original post, I thought I'll add the section about how they measured/ assessed the antibodies compared to the control sample: From the paper: "Serum antibodies against gAChR α3 and β4 subunits were quantified using a LIPS assay (13, 19), in which specific antibodies are bound...

Yes, @Sean and @SNT Gatchaman -- Even if only one patient in this group had significant test results or could actually be diagnosed with another disease than FND, that would be an important finding. Also, to be fair I haven't read the paper and have no idea how the 'diverse autonomic...

There's something with this tweet I have been wanting to ask on the 'basic questions on research metholodolgy' thread for a while now -- even if it's more about language/ wording of study reports. I wonder which is a large enough sample to report in percentages instead of natural numbers. To...

It's a pity that we don't have a screenshot of Per Fink's university (?) website where he listed the JNNP piece apparently before it actually had been through the review process: (Link to Per Fink's CV doesn't work anymore)

Just skimming so apologies for only picking up one thought and rather off-topic (Mods feel free to move my post) So don't you think S4ME proves that it's actually possible to 'build creative research out of collaboration' without meeting face-to-face? At least we have the community lounge and...

In addition to Neil O' Connor's there's more authors' involvement with Cochrane and NICE:

Just stumbled across Arthur Stone, researcher on 'Self-report of medical and psychological outcomes' when searching for more of =1']Eccleston's and Amanda Williams' work. Sorry currently unable to skim his papers but thought could be relevant for those of us working on the issue. A. Stone's...

It seems that link is dead -- new URL is: https://citizen-network.org/library/in-the-expectation-of-recovery.html Link to the PDF: https://citizen-network.org/uploads/attachment/492/in-the-expectation-of-recovery.pdf It's the excellent report by George Faulkner on the PACE trial -- see posts...

But it all does not make sense to me as Wampold and his supporters seem to refer to RCTs themselves for the claim that all types of psychotherapy are more or less equally effective. Their point is that it's not the treatment's specificity that's beneficial but common features like therapeutic...

Stumbled across the 'dodo bird verdict' while searching for how academic psychology has been acknowledging and handling the difficulties to assess benefits and harms from psychotherapies (due to the fact those interventions can't be blinded). The claim is that all psychotherapies are equally...

Requested the full text of this paper yesterday and got it today. Another Elsevier journal that I think still has many paywalled full texts (often with "section snippets") on ME/CFS is the Journal of Psychosomatic Research .

Forum thread here. Controls were sedentary -- but agree that additional controls with other illness would be good. And a larger sample size.

Moved post Happening this week -- such a pity that it seems we don't have any allies who could be in attendance to offer some fact-checking: