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I thought higher reaction time also could mean just being slower -- slower in thinking, slower in clicking. Being slower in thinking also makes attention slower. Why this should suggest an 'attention deficit disorder' isn't clear to me. But I wonder why reaction time isn't used more often to...

Thanks @Andy for posting. In Raul's newsletter, Pippa's article is on the top. Tweeted here:

See also the members only thread on the IQWiG report plan on ME/CFS: https://www.s4me.info/threads/help-needed-for-a-comment-on-the-iqwig-draft-report-on-me-cfs-due-27-november-2022.29968/page-3#post-452033

Now not able to post myself but I think it would be good to have a thread and/or poll on what people think could help. E.g. for me I think it would help to have a personal assistant once or twice a week whom I could email texts /communication that need some help. With regard to forum activity...

It took me weeks to write these posts. So please don't think that someone who can read a lot or write lengthy posts doesn't experience cognitive dysfunction too. You don't know how they struggled and at what cost they read and post (and how much PEM will follow). I don't dare to imagine a...

Apologies - struggling with cognitive dysfunction / PEM and not sure where to put this. Also sorry that I'm not able to read all posts in this thread. I agree with the idea hat accessibility of ME advocacy could be improved with regard to cognitive impairment/ fatigability. Again, DecodeME...

Draft Methods 7.0: IQWiG extends the comment period. New deadline is Tuesday, 2023-02-28. Interested individuals and institutions now have one month more to comment on the extensive content additions and updates in Draft 7.0 of the General Methods...

Merged thread When the doctor doesn’t listen - Coda Story (by David Tuller) https://www.codastory.com/waronscience/chronic-fatigue-syndrome-long-covid-unexplained-symptoms/ The medical establishment has a long history of ignoring patients with ‘unexplained’ symptoms. Long Covid might finally...

BBC News: Kara Jane Spencer: Severely ill singer who recorded hit album dies - BBC News https://www.bbc.com/news/uk-england-derbyshire-64160788 The ME Association: BBC News: Kara Jane Spencer: Severely ill singer who recorded hit album dies | The ME Association...

Moved from the Long Covid in the media thread McGraw, Mark. MRI Shows Brain Abnormalities in Post-COVID Patients. Oncology Times 45(1) 35, January 5, 2023. | DOI: 10.1097/01.COT.0000912108.20250.c4 According to the U.S. Centers for Disease Control and Prevention (CDC), about one in five...

The DEGAM guideline report states that the special vote was only accepted to be included in the guideline after the authors had edited their text. Among other things, maybe they had to add the "after consensus was reached" to the Flottorp et al reference? Sorry not able to check myself now but...

Only able to skim now but it seems that their 'special vote' is only included in the long version of the guideline. So neither the short version nor the short versions/ 'modules' for patients and/or health care professionals included any of the claims made by the authors of the 'special vote'...

Some context why I think it would be helpful if forum people could submit a comment -- perhaps focusing on two points: 1) Why patient participation matters -- how this needs to be improved: 2) Why results from clinical research with a certain trial design that's particularly common in some...

Apart from Wessely, is any other signatory of the 2018 letter also author of the 2022 article? Anyway, in principle it seems Wessely et al got that point right in their 2018 critique of NICE but Wessely and the other 'et al' from the 2022 critique now got that point wrong. I find it...

Yes, I'm particularly impressed by his strict abstinence from references.

It includes one of the experts that gave expert testimony to NICE: Mujtaba Husain Link to expert testimonies on NICE website (PDF)

Thanks Hutan. As IQWiG provides only the German version of the draft handbook I attach the machine translation into English. If you'd like to compare, here's the direct link to the English version of the currently used methods handbook...

One of the study's authors is Peter Henningsen who has a thread of his own here:

Limburg K, Radziej K, Sattel H, Henningsen P, Dieterich M, Probst T, Dale R, Lahmann C. A Randomized Controlled Trial Evaluating Integrative Psychotherapeutic Group Treatment Compared to Self-Help Groups in Functional Vertigo/Dizziness. J Clin Med. 2021 May 20;10(10):2215. doi...

Just was searching for patients' accounts of harms and retreived this excellent video. Apologies if off-topic but can't find a better thread now: When writing about potential harms, I think it would be good, in addition to the sources provided in Adam's video, to have a good collection of...