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Thanks @CRG for providing some context -- as it seems to me what Nunan says in individual tweets isn't necessarily wrong per se, just weird what he's referring to -- e.g. he's criticizing articles that rebut the review's conclusions but skipping the review's actual weaknesses/...

From another thread:

Apologies not able to post more about that myself at the moment -- but I think having a look at David Nunan's twitter account on that topic could be worthwhile for another reason. (starting ~ 2023-03-05) Nunan is a member of the authors team doing the 'full update' (or how it's called) of...

If anyone else finds it useful -- QR code to the DecodeME website/ 'ways to share' attached. (Created by https://goqr.me/ )

I appreciate your reminder to questioning over-confidence and apply some self-reflection. In this case I agree with others who said that Paul Garner has been offered different views and advice and it was his choice to whom he listened and what he shared publicly. I remember there have been...

Also if you have a look at the NICE guidance for eating disorders it seems not helpful for any difficulty with eating that has not an established psychological cause. I don't have the expertise though to gauge if it is even useful for the 'classical' eating disorders. The point I was trying to...

Again apologies for not having read through the whole discussion as moving on too fast. Sorry if I make redundant points. From skimming, I think it could help offer us as well as the doctors who happen to be in charge of pwME who can't eat a potential alternative explanation which could make...

Only able to skim the discussion very superficially so apologies if not relevant but thought maybe it could be helpful to continue the discussion on hypothesis on causes on an existing thread? https://www.s4me.info/threads/is-me-a-metabolic-problem-or-a-signalling-problem.10981/

About some BPS proponents' claims of being harassed by ME/CFS activists. Won't be able to succinctly word anything about that issue in the near future, but glad if anyone else felt up to add some useful points. Maybe as a start: I think it's worthwhile to both distance oneself from any...

Have no access to the article so no idea about how the authors deal with the limited evidence there. Also not able to gauge the usefulness of the added infographic that is free access: Link to 'infographic' -- free access: https://www.bmj.com/content/380/bmj-2022-073488/infographic On the...

I see. So you could include both links -- the archive link for those who want to read first and the direct link for those who want to comment. I realize thought that's perhaps too complicated. Edit: Of course, the webarchive link displays the link to the article too, so just one click more...

Webarchive link to not give them more traffic: https://web.archive.org/web/20230225104752/https://www.livpost.co.uk/p/professor-paul-garner-was-delighted

Earlier this week, I sent this letter to Hilda at her IAG e-mail address : (See also this post above.) Dear Hilda, Thank you for replying to my e-mail when I asked you to inform people with ME/CFS if not about an update, then at least about the delay and whether the IAG was still working...

Only able to skim but in case it's useful -- brief previous discussion on gait here: https://www.s4me.info/threads/objective-assessment-of-diverse-types-of-ms-related-fatigue-and-fatiguability.4241/page-2#post-184885

I thought this review by IQWiG staff could be relevant to the discussion on an appropriate outcome measure for ME/CFS – firstly with respect to how clinical significance can differ from a significant change in a measure that is assumed to be relevant but hasn’t been validated for the specific...

From skimming I think the point of the review posted above (#15) is about what to do if improvements of a certain objective measure doesn't have clinical significance. The review seems to only consider drug trials that are blindable, but I think it could be still relevant for the discussion on...

From IQWiG: (From skimming, I didn't see any mention of the ACR or EULAR -- still seems relevant to this thread.) "#CDAI is the first choice for measuring treatment effects of disease-modifying #antirheumatic drugs. Using a broad evidence base, a team of IQWiG authors compared measurement...

PubPeerBot on Twitter: "I'm a bot who works for @PubPeer. Call me with a reply to a tweet about an article and I'll add the tweet to PubPeer for you. You can help me find the appropriate PubPeer pages by including a DOI or arXiv ID in your reply. (nb. Like yours, my PubPeer comments are also...

@Hutan -- thank you for another very helpful quick comment -- To be on the safe side, perhaps add a [sarcasm] note behind your interpretation of the authors' perception of the patients/ patient involvement? ( I agree with your interpretation and think it's an illustrative example on how...

Oh no! Sorry to hear that. Yes. Not what people associate with the most commonly used stock images for articles on LC and ME/CFS.