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Löwe B, Andresen V, Van den Bergh O, et al Persistent SOMAtic symptoms ACROSS diseases — from risk factors to modification: scientific framework and overarching protocol of the interdisciplinary SOMACROSS research unit (RU 5211) BMJ Open 2022;12:e057596. doi: 10.1136/bmjopen-2021-057596...

On SOMACROSS see this post.

And here's some of the members' output -- see projects and publications listed here: "SOMACROSS": Development and Persistence of Somatic Symptoms (SOMACROSS - Persistent SOMAtic Symptoms ACROSS Diseases: From Risk Factors to Modification) The new Research Unit RU 5211, led by the University...

Apologies for just popping in -- thought the connection to EURONET-SOMA was interesting: Acknowledgments The PSY-PSS framework was inspired and influenced by the scientific exchange within EURONET-SOMA, the European Network to Improve Diagnostic, Treatment and Health Care for Patients with...

Abstract Objectives The objective of the present study was to test the moderating impact of an unknown pain etiology on the relationship between psychological factors and chronic pain intensity and disability. Methods N = 471 chronic pain sufferers presented to an online Cognitive Behavioral...

Thought it could be helpful to have an own thread on EURONET-SOMA. From the blurb: Persistent somatic symptoms are common and complex phenomena which pose major challenges to psychosomatics and many other medical specialties across Europe. [...] Chronic courses of disorders are common and...

I think that once more shows that there should be rules with regard to what qualifies people to take an active role as a 'consumer' or patient partner in health research (e.g. not present anecdotes of recovery as evidence). Also, I think the most appropriate institutions to decide about rules...

Not sure whether already posted elsewhere that they have a Consumer Advisory Committee? (Includes Prof. Paul Garner) https://www.coffi-collaborative.com/consumer-advisory-committee For activities of the committee see also: https://www.coffi-collaborative.com/news From Feb 2021: Workshop...

https://www.nice.org.uk/guidance/ng206/evidence -> H Management of ME/CFS https://www.nice.org.uk/guidance/ng206/evidence/h-management-of-mecfs-pdf-9265183029 -> Appendices Non-Pharmacological interventions.....p.5 -> Appendix J Excluded studies.....p. 545

Health Nerd on Twitter: "So, I disagree somewhat with this piece from @edyong209. As I've been saying for some time, I think the biggest challenge in the discussion of Long COVID comes back to definitions“ / thread reader: https://t.co/rQqke3yf7r Not up to reading but at first glance seems...

See: https://www.decodeme.org.uk/ways-to-share/ "Plus we have ready-to-go social media posts and text messages to copy and paste below." Short message (under 280 characters) Longer message (above 280 characters) Both messages are directed directly at potential participants. I wonder if...

Via email from IQWiG / News on projects, reports and public hearings: N21-01: Current scientific knowledge on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) Processing status: Processing completed Last update: 19.04.2023 The final report has been sent to the contracting...

References to 'CFS' : Below is the link to the electronic supplementary material. Supplementary file1 (DOCX 168 KB) From that file: Chronic Fatigue Syndrome [...]

A forum search shows also this co-authorship with Peter White:

Yes, odd. Acknowledgments "This study was performed using data from the Lifelines project, University of Groningen, Netherlands. It was only possible with the help and co-operation of the Lifelines management staff and Judith Rosmalen, Rei Monden, and Klaas Wardenaar of University Medical...

Stumbled across the paper discussed here when searching for a place to post the following. Not sure if this is a proper place but as the review discussed here also includes physical activity / exercise, will leave this here for now. David Nunan on Twitter: "Here's a talk I gave in 2019...

About the terms ‘prospective' and ‘retrospective' in observational studies in epidemiology. Not up to word my question so just leave this quote from the STROBE Initiative here. Strengthening the Reporting of Observational Studies in Epidemiology (STROBE): "We recommend that authors refrain...

Sorry for muddled thinking and wording -- post now too old to delete. Still I think it would be worthwhile to do a review on trial design, outcomes (subjective/ objective), and reporting on outcomes in the field of research on treatments for ME/CFS, MUS, and maybe also comorbid depression in...

Health Nerd (Gideon Meyerowitz-Katz) on Twitter: "A recent study on Long COVID in children has gone viral for purportedly showing that the condition in kids is not related to a previous COVID-19 infection. I don't agree" 1/n (thread)

Immune adsorption for the treatment of fatigue-dominant long-/post-COVID syndrome—a case series of standardized individual experimental therapy Research letter / case series of 10 patients. Announced English version not published yet. So in lieu of an abstract here's a google translate link...