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The Leicester researcher looking at X chromosomes was unwell so didn't present. I think she is only just starting up. I hope to contact her to learn a bit more.

Nothing is more informative - other than reading the reviewers' reports. You cannot do numbers on stuff like this. The parameters are quite different for different research fields. The MRC need to stop using ignorant reviewers. Which means that physicians need educating and need to care. How you...

Audrey Ryback talked about her work on electronic health care records in Lothian. This is impressive. They appear to have a genuinely population based cohort. The prevalence was up at 0.8% - 7,000 cases out of 900,000 people. In other words everyone with ME/CFS in a defined area. This begins to...

Katherine Seton talked about a preliminary study of the feasibility of a red light therapy trial, justified by something to do with oxidative stress and mitochondria. I could not make much sense of it. It was mostly about how patients managed with the treatment and outcome scoring as far as I...

Three was a presentation on comparing drug side effects with ME/CFS symptoms in the context of the idea that ME/CFS is an autoimmune disease against G protein coupled receptors. So far as I am concerned that idea is a non-starter since healthy controls have similar antibodies.

Chris Ponting gave a very sharp presentation on the core data from DecodeME and explained the next steps in terms of pinning down imputed genes and looking for other SNP signals that did not pass the initial filter of top hits. He also pointed out that a number of genes are replicating across...

There were two clinical presentations around clinical services, one at UC and one from Sivan (HERITAGE). In the absence of any valid data on efficacy for anything there seemed no point. I didn't get the impression that they understood what the central questions were.

Altmann didn't really produce any data. He gave a general review - maybe because there isn't much to say.

There is no point in trying to do statistics on this. All that matters is whether or not reviewers trash good projects before they get to funding panels. There is evidence that they have done. The MRC folk are nice enough people but I saw no indication that they had any insight into how the...

I was there throughout and did all the networking I had hoped to do. I can do a resume when I have recovered. I recorded the talks I thought might be of value. A pity that the Leicester researcher looking at X chromosome inactivation was not there but she has hardly started so would not have had...

Yes, I put my money on this. I think 'sickness behaviour' is one of those ragbag terms that can be useful but was never going to cover just one process. A similar situation applies to inflammation where you have shifts in water and protein permeability plus cell emigration. Different mediators...

Probably was. I didn't think we were at the stage of rolling this out as a commercial test though. The diagnosis is clinical. The test might suggest some altered immunology but so far we have no idea what to do about that.

Some lab experiments could be useful. I don't see any need for those experiments to be given a trademark until we know if they show anything interpretable.

No doubt the test is technically feasible but I don't think anyone has any idea what it might mean or what use it would be. T cell dysfunction doesn't mean anything. It might mean T cells doing the wrong thing in a particular context but since we don't know what the context is or what would be...

Yes they did.

I think this is the site: https://www.eventbrite.co.uk/e/nihrmrc-showcase-event-for-post-acute-infection-conditions-research-tickets-1634149106969?aff=eemailordconf&utm_campaign=order_payment_confirm&ref=eemailordconf&utm_medium=email&utm_source=eventbrite&utm_term=viewevent

Programme for tomorrow: Agenda: Registration and Refreshments from 10.00 to 10.45am Chair: Louise Wood, Association of Medical Research Charities (AMRC) Welcome and Introductions 10.45 Mary De Silva, Deputy Chief Scientific Adviser, Department of Health and Social Care Session 1...

I can see that psychological practice is very much about conforming and in that sense 'conservative'. I am sceptical about this having much to do with politics or industrialisation though. I see it as closer to religion and likely something that has been there for millenia. There have probably...

Except that these diseases only seem to overlap in the minds of fringe physicians. They say nothing about who they are or who has joined up. I do wish this bandwagon would grind to a halt. As I mentioned in an email to MERUK today, the constant repetition of this MCAS,EDS,POTS, mantra is a...

It seems to be a long list of unevidenced statements about how dogmatic claims by obscure people account for people's thoughts and behaviour - exactly like the essay itself. I find Shakespeare more insightful.