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From what I can tell, one of of the clinicians involved in the trial is from the Mayo clinic. here is a quote from the frequently asked questions page about the trial: In order to enroll in this trial you must be a patient under the care of the participating clinicians: Dr. David Kaufman MD...

Merged thread Simmaron Research Newsletter Summer 2023 Here is the most recent Simmaron Research newsletter….. …………… Simmaron’s mission is to change the game for ME and Long-Covid drug research, so we can finally have treatments! We are resolving key roadblocks that prevent our entire...

Here is an excerpt from Ed Yong's latest newsletter: .......... Two newsletters ago, I mentioned my last piece for the Atlantic--I resigned last week for those who missed that news--which is about what "fatigue" really means for people with long COVID, ME/CFS, and related illnesses. Whenever I...

In the newsletter Winsantor also wrote about a quasi "crowd funding" investment path they are pursuing as another source of funding for phase 3 trials. That is new to me. It is thru the site, wefunder.com. the drug is administered through a topical patch. Showing nerve regeneration would...

I recieved this newsletter and could not find it posted on the Internet, so I thought I’d post the text. This is a newsletter from a small company, Winsantor, who is testing a topical drug (WST-057) to see if it increases small fiber nerve density (and improve symptoms?) in diabetic patients...

And.. the last 3 paragraphs superlatives include: innovative, pioneering, transformative, remarkable, profound…. this sentence especially seems to stick in my craw, “This means that the fruits of our research could soon provide hope for ME/CFS and Long COVID patients globally, promising a...

the video is up at the Solve ME/CFS youtube site:

I could not resist posting this one…. ………………….. Effects of Nature-Based Multisensory Stimulation on Pain Mechanisms in Women with Fibromyalgia Syndrome: A Randomized Double-Blind Placebo-Controlled Trial, 2023, Pain Management Nursing, Gungormus DB, et al. Abtract: Background: The term...

I watched the webinar. Very interesting. They are still in the research stage. The device is designed to fit in the ear and measure cerebral blood flow. It will also be able to measure if you are upright, standing, lying down, etc.. It measures heart rate, blood pressure also. He did at one...

That is a very clear and well communicated presentation with wonderful graphics of experimental results that were easy for me to interpret. Some of the data she presents is not yet published. @Hutan, thanks for posting this video.

Maybe this is a bit off topic, but I think this device (if it gets into commercial availability) might be useful. https://www.s4me.info/threads/new-in-ear-device-promises-to-predict-fainting-help-understand-dizziness-and-brain-fog.33688/#post-483057 here is some info...

@Jonathan Edwards, thanks. that is the kind of response I was hoping to enlicit. I do wish more people would watch the videos and comment. In the final video Dr. Prusty gets asked “what next.“ that is about five minutes and 30 seconds in and for the next four minutes or so he does his...

I understand and appreciate your humor, and I initially had the same reaction when I watched the video, but in this case I think these reactions are misplaced. At about six minutes into the third and final video, Dr Prusty explains that the reason he would go to a mouse model is that the...

pretty interesting. here is more info on the company. It seems they have just only recently received $5 million in funding. It appears that their initial grant funding was done by the United States military. The founders appear to have the technical know how...

here are a couple of other links. The first is the announcement of a webinar by Solve ME/CFS on this device. https://solvecfs.org/event/the-future-of-symptom-tracking-exploring-stat-healths-revolutionary-in-ear-device-that-measures-blood-flow-to-head/ here is the link to the devices website...

There are now 3 videos up at this site, which are a presentation by Dr. Prusty just split into 3 parts. I found watching the videos to be much more informative than trying to troll through that paper. in the third video he says that he thinks the next steps are to go to mouse models because...

Jared Younger's group. The journal is "PAIN". The text is behind a paywall. Evidence of neuroinflammation in fibromyalgia syndrome: a [18F]DPA-714 positron emission tomography study. Mueller, Christinaa,*; Fang, Yu-Hua D.b; Jones, Chloec; McConathy, Jonathan E.d; Raman, Fabiod; Lapi, Suzanne...

here is the text of an email from Simarron about the bh4 research: https://simmaronresearch.salsalabs.org/simmaronpublishesbh4?wvpId=7806213e-6f92-4a32-b0c3-45ebd3e8fe35

Abstract 50% of POTS patients are hypocapnic during orthostasis related to initial orthostatic hypotension (iOH). We determined whether iOH drives hypocapnia in POTS by low BP or decreased cerebral blood flow velocity (CBFv). We studied 3 groups; healthy volunteers (N=32, 18±3y) were compared...

For those with access to ResearchGate, the pdf of the paper is posted there. https://www.researchgate.net/publication/370948792_First-in-human_prediction_of_chronic_pain_state_using_intracranial_neural_biomarkers