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Signicant Microvascular Abnormalities Are Present in Autonomic Dysfunction: Results of a Prospective Study Sehreen Mumtaz, et. al. Abstract Purpose The prevalence and phenotype of capillaroscopic abnormalities in patients with autonomic nervous system dysfunction has not been investigated...

I keep wondering how these studies get funded. https://www.tandfonline.com/doi/pdf/10.2147/JPR.S481274 ABSTRACT: Purpose: Small fiber neuropathy (SFN) is characterized by neuropathic pain, associated with decreased quality of life (QOL). It remains unclear which psychosocial factors play a...

Spanish authors…. I did not read beyond the abstract. it seems rather stunning to me that this is considered science… https://pubmed.ncbi.nlm.nih.gov/39557041/ I found a pre-print here...

Here is a link to a recent publication on which Dr. Systrom was 2nd author. Orthostatic intolerance with tachycardia (postural tachycardia syndrome) and without (hypocapnic cerebral hypoperfusion) represent a spectrum of the same disorder Peter Novak 1,2*, David M. Systrom 2,3, Alexandra...

Peter Novak and David Systrom, etc. Peter Rowe is a reviewer… one quote from the paper: Our study provides additional evidence of importance of cerebral blood flow and respiratory system in orthostatic intolerance syndromes without orthostatic hypotension...

Pretty interesting opinion piece. Final author listed is Dr. Blair Grubb. here is an quote from it (my bolding): In summary, diagnostic criteria for POTS and other common autonomic disorders have been established and are vastly different from the diagnostic criteria of FND (Table 1)...

In addition to @Sasha's and @SNT Gatchaman's valid remarks.. I just read this for the first time and it was clearly written and I could understand it. There were a couple points I will remark upon: "The United States Institute of Medicine (2015) suggested ‘Systemic Exertion Intolerance...

I am a lie down flat type. Mostly it is because I feel bad but lying flat also sometimes moderates pain or fatigue levels. Measuring "time spent lying flat" would be a interesting stat. I suspect most of our cases are complex enough that it be difficult to say this flat lying measurement is...

I once consulted with a MD at a local university teaching hospital here in the USA who spent his whole career (he was close to retirement) working in the innate immune system realm because I had a couple anomalous immune system blood test results that were consistently appearing, of which one of...

@Jonathan Edwards, thanks for your enlightening replies. I am always learning about physiology from your statements. here is what appears to be a UK charity just set up for warning about salt consumption by humans… Action on Salt Wolfson Institute of Population Health Queen Mary University...

Merged thread The woman who could smell Parkinson’s this is a long audio story about that woman who has ultra sensitive sense of smell and her ability to smell Parkinson’s even before it’s diagnosed by the medical community… …it does make one wonder if there’s other diagnosis out there waiting...

@shak8, I’m assuming from your avatar that you are in the United States. if you have Insurance coverage or cost isn’t an deterrent, you might try finding a neuro-muscular specialist at a university teaching medical school. they will be familiar with all sorts of obscure neuromuscular...

I have a basic naïve question about this study. I noticed the patients are aged between 18 to 24 years old. Anybody have a guess as to why they are using such young patients? it a nature of the disease or because young people are more likely to have fewer complications with such an therapy, etc...

a Sunday December 17, 2023 New York Times guest essay by Giorgia Lupi. 1,374 DAYS MY LIFE WITH LONG COVID https://www.nytimes.com/interactive/2023/12/14/opinion/my-life-with-long-covid.html it may be paywalled.

I bet it was the “savoring positive events” that did it…. and the effects even lasted a month!!

@Pibee, thank you for posting that impressive video. I had to laugh at that I had to slow the video down to three-quarter speed to follow it! is it possible for you to expand on the quote above? You seem to place some emphasis on small fiber neuropathy diagnosis. if it’s possible to point us...

@Hoopoe, good question. here’s a recent paper published on autonomic dysfunction and variants. Genetic landscape of congenital insensitivity to pain and hereditary sensory and autonomic neuropathies Brain, Volume 146, Issue 12, December 2023 https://doi.org/10.1093/brain/awad328...

Posts moved from the Long Covid in the media thread Ed Yong opinion piece on Long Covid and ME/CFS in the New York Times. Reporting on Long Covid Taught Me to Be a Better Journalist https://www.nytimes.com/2023/12/11/opinion/long-covid-reporting-lessons.html it may be paywalled for some...

@Joan Crawford, thanks for posting this. If anyone tries to watch this video and quickly gets bored, I found it advantageous to go to about 14 minutes in and that’s when the actual talk seems to start. The new information for me was the future activities that he intends to partake in and there...

Here is another thread on this Stat-Health device. I found the Solve ME/CFS webinar informative. https://www.s4me.info/threads/new-in-ear-device-promises-to-predict-fainting-help-understand-dizziness-and-brain-fog.33688/#post-483074 (Threads since merged)