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3 month trial. no benefits…

Thanks @Utsikt! I was just able to get an ORCID account and I do not have an instutional email address. I just used my Gmail account address. I just went to the ORCID homepage and followed the instructions. when they asked me my institution and institutional affiliation I put in my university...

Perhaps you should just say this and and use it to define what you mean by "hypervigilance" in this context.

Jonathan, I did a search for “vigilance” in your document. excluding your references, here is a list of usages of “vigilance” in your document: 'neuroimmune hypervigilance' 'immune hypervigilance' 'health vigilance' 'hypervigilance' immune states hypervigilance presents as acquired...

Jonathan, you missed my previous qustion? Here it is again. @Jonathan Edwards , I was trying to understand some of your statements with only having a hotdog bun education (at best) in this area…. in the “myalgia not arthralgia" section you say, "Reports of systemic cytokine levels in ME/CFS...

@Jonathan Edwards , I was trying to understand some of your statements with only having a hotdog bun education (at best) in this area…. in the “myalgia not arthralgia" section you say, "Reports of systemic cytokine levels in ME/CFS have been inconsistent, but one relatively recent study found...

So you saying that the "feeling lousy" is only encoded in the electric potentials, if so, will the "feeling lousy" be measurable or do we need to look elsewhere to measure?.

So, Jonathan… does this theory incorporate your ideas about consciousness that you have posted on Qeios? to be clear, here is the reference… https://www.qeios.com/read/DEUK7V.3

Are you aware of David Systroms work in this area and would they be a source of samples? https://www.omf.ngo/david-systrom-interview-muscle-biopsy-study/

Jonathan, as a aside, what is your definition of POTS?

@Hutan, i'm not sure if this helps any, but evidently they are in a class of testing referred to (in the USA) as, "free of charge", like Invitae. Here is a NIH report/paper comparing the two: https://pmc.ncbi.nlm.nih.gov/articles/PMC11172676/

@Utsikt, I use a Kindle Paperwhite and most of my reading on it is from books obtained through my local public library. Many libraries here in the USA offer ebook versions. The process of obtaining the loaned out book thru the Library system (and Amazon) seems to work well. I recently read...

Jonathan, does any of this apply to "referred pain"? How does it occur?

I can make it "make sense"… I may have to think on it for a while. It seems that in the rubber hand illusion could apply to tactile allodynia in that the pain signal might be reprocessed as a simple touch and not painful? Or am I missing something?

research from Singapore… @Jonathan Edwards? paywall for me. https://www.jni-journal.com/article/S0165-5728(25)00039-6/abstract Efficacy of rituximab on antibody-positive small fiber neuropathy: A series of 5 cases Results Two patients were positive for anti-TS-HDS, one for anti-plexin D1...

Abstract The aim was to analyze the effects of virtual reality-based rehabilitation (VRBR) in patients with fibromyalgia syndrome (FMS). This systematic review and meta-analysis was performed following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. A search...

@Hoopoe, I have been diagnosed with SFN and have PEM like symptoms also and have wondered about this. As Jonathan says, there doesn’t seem to be any good understanding of causitive factors. You might find this of interest. Dr. Todd Levine in the USA has a classification system he’s developed:

@Utsikt, yes, it is a tour de force!

The psychological and physiological effects of a virtual reality-based treatment program in female patients with fibromyalgia syndrome: A randomized controlled trial. Sari et al, 2025 Abstract The study aims to evaluate the effects of virtual reality (VR) programs on disease activity, central...

I second this idea. I live in the USA and I used a document from the Massachusetts ME/CFS & FM Association more than 25 years ago. It was invaluable. I was very naïve when it came to the legal process of obtaining disability benefits. I followed the document to the letter and I'm glad I did...