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    Metoprolol/Selo-Zok (beta blockers) - any experience?

    Kalliope, I use 25mg metoprolol 2x/day. no apparent side effects for me. it has been a few years since I’ve measured this, but, for me, it did control somewhat a racing heart upon standing in a poor man’s till table test...
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    Article in Aeon-How the body and mind talk to one another to understand the world--Sarah Garfinkel

    @Jonathan Edwards, I would like to know your interpretation of what’s going on in phantom limb pain in amputees and the use of mirror therapy to fool the brain into interpreting the non-painful movement of their other limb as the actual movement of the phantom limb and thus achieving pain...
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    OMF: A Holiday message from Dr. Ron Davis, 2018

    One thing I have noticed about Ron Davis’s OMF work is if there is no way to test what he wants to test, he will attempt to try to develop a test. I suspect that’s a difference from having private funding rather than government funding. He has the leeway to do this.
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    Associations between clinical symptoms, plasma norepinephrine & deregulated immune gene networks in subgroups of adolescent w/CFS, 2018, Nguyen et al

    @Joel, I found it on sci-hub... http://tree.sci-hub.tw/83658bded4ebb538872c8d64f2e6eeec/10.1016@j.bbi.2018.11.008.pdf
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    The Scientist: Probiotics’ Effects on the Microbiome Vary Widely

    https://www.the-scientist.com/news-opinion/probiotics-effects-on-the-microbiome-vary-widely-64760 I thought this was an interesting short write-up of 2 different small studies looking at probiotic supplementation and, and in one, fecal transplants. One more area that will need much more research.
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    OMF update - Research on red blood cell deformability.

    A quote from that page (my bolding):
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    David Systrom, researcher, Brigham and Women's Hospital, USA

    here is Dr Systrom's the funding source announcement from last year.. https://solvecfs.org/announcing-smcis-new-mecfs-research-program-at-brighams-and-women-hospital/
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    David Systrom, researcher, Brigham and Women's Hospital, USA

    @rvallee, great video, thanks. Dr Systrom is clear communicator, which always helps. it’s really encouraging to see these practitioners and researchers coming together and trying to push forward understanding and solutions. @Jenny TipsforME, I think small fiber neuropathy is only diagnosed...
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    Association of T and NK cell phenotype with the diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Rivas et al, 2018

    my cd4+ numbers are consistently high and my CD8+ numbers are consistently low.
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    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome, 2018, Yu et. al.

    https://www.ncbi.nlm.nih.gov/pubmed/29618472 other authors include Dr. Satish Raj and Dr. Kem of the University of Oklahoma.
    • voner
    • Thread
    • 2018 autoantibodies me/cfs paper pots satish raj university of oklahoma
    • Replies: 0
    • Forum: ME/CFS research
  11. V

    Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

    then they later say...
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    Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

    I am browsing the artcile and this paragraph jumps out. To me, this is a pretty confusing and muddled statement.
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    Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

    Trish, did you go to the sci-hub site and then enter the doi # into their search bar? That works for me...
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    Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

    bump! @Jenny TipsforME, @Trish. I was able to access this paper via sci-hub.la using its doi #... https://doi.org/10.1016/j.autneu.2018.02.003 haven't read it yet,though.
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    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    in my case (of n=1),The vasoconstriction (which I’m assuming is there because of The cold feet Symptom) occurs intermittently at all times. this means it is not dependent upon me being upright or lying down. It is also intermittent. This means that that certain times of the day I can be almost...
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    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    Jonathan, here is a description from dysautonomia international of POTS symptoms. A lot of those symptoms reflect the symptoms of many ME/CFS Patients. how does a clinician separate the POTS patients from the ME/CFS patients? That I’d like to know. I suspect it comes down to postexertional...
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    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    I am fine with using the term "autonomic problems” instead of dysautonomia. my observations have been that ME/CFS Patients have a range of autonomic symptoms. I think there are commonly used (in the uncommon world of autonomic system dysfunction) sweat tests as I have heard some patients...
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    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    I have POTS "in the technical sense". As far as, “what symptoms does it cause that are problematic?” I personally can't say. some of the symtoms could be driven by POTS, but might not be. i’ve never been able to sort it out and I’ve never run across a medical provider who had a clue, even ones...
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    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    What an potentially useful thread! I have assumed that the term “orthostatic intolerance“ was commonly used because some ME/CFS patients fall a bit short of the “30 bpm increase upon rising" threshold, but still clearly have POTS-like issues, at least that is what I heard Dr. Bateman say...
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    Mady Hornig interview from ME conference in Oslo - November 2017

    @Diwi9, thanks for posting that. she is such a clear and expressive communicator. I enjoyed hearing her speculations and descriptions of her areas of interest. she’s obviously still very interested in the microbiome. One thing she said that I had not heard before is that she thought that...
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