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  1. FreeSarah

    Clare Gerada: influence on UK medical practice and ME/CFS management

    When I was teaching we used to have conversations like this about the students. Then by the morning we’d be sober.
  2. FreeSarah

    Trial By Error: The Crawley Chronicles, Continued

    They seem to have some competence issues in the legal department, too, then: Dear Mr Tuller, I can confirm that we have not sent a cease and desist letter in defence of Prof. Crawley, despite the fact that Prof. Crawley said we had. We have however, had secret communications with some old...
  3. FreeSarah

    Phase III Rituximab Trial - News

    I only heard about this today. It’s obviously disappointing, but I’ll tell you what — I’m incredibly proud of the response of people in the ME community, here and elsewhere. With this attitude, the disease doesn’t stand a chance. We’ll nail it.
  4. FreeSarah

    USA - Mayo clinic

    Oo, goodie. Also just noticed that one of the things "Your doctor must rule out" before diagnosing CFS is .... Nice to know ME/CFS isn't a medical problem. I'm feeling better already.
  5. FreeSarah

    USA - Mayo clinic

    Yep, seems the Mayo Clinic site has been hacked by faeries. I had been under the impression that the Mayo's own website was okay but now I realise there's a second tab - Diagnosis & treatment — where this stuff lurks...
  6. FreeSarah

    post-Lyme vs ME: comparative study (France - dec 2017)

    That's the weirdest thing I've seen in a long while. A one-day 'study' with the title Étude MYSTIC — with the MYSTIC in caps — to be held on New Year's Eve. I can't help feeling that the patient population for this might be somewhat atypical ... of anything. [typo edited]
  7. FreeSarah

    Action for ME AGM (UK) is live streaming now

    This is a personal thing, but to me this kind of set-up always looks like a politburo assembly. Do AGMs really have to be done like this? I realise that, not for the first time, I'll likely be accused of wanting to hold hands and sing Kumbaya (and what's wrong with that?, I say) but isn't there...
  8. FreeSarah

    Coyne: No, seats on the US Institute of Medicine advisory commitees are not for sale, despite what the Dutch Parliament was told

    Yes. As Coyne says: "Patients and their carers and advocates would do well to be vigilant for the next move from the Dutch Health Council."
  9. FreeSarah

    Coyne: No, seats on the US Institute of Medicine advisory commitees are not for sale, despite what the Dutch Parliament was told

    van Gool: It's like these guys are auditioning to be Bond villains. One thing's for sure: Chauvinism is alive and thriving in the world of medicine.
  10. FreeSarah

    Gluten-sensitive? It may actually be a carb making you ill

    I know what you mean — seems like every day there's a different claim being made about the gut, and I'm not convinced that anyone knows anything much about it yet — but this one does interest me. I'm very gluten intolerant — or thought I was till I read this! — but I also can't take probiotic...
  11. FreeSarah

    Wessely gets touchy feely

    :-) though even a Vogon might disown "I think with my soul"
  12. FreeSarah

    Wessely gets touchy feely

    So, should Sir Simon from now on be Dr Feelgood? (If so, I wonder if @Bill could locate one of his old album covers)
  13. FreeSarah

    Tymes Trust - No reported harassment of staff at Bristol University

    Heh, quite. If the Sunday Times had used that actual photograph of 'ME militants' instead of a letter they made up themselves (oh, British journalism, where did it all go wrong?) people would have thought it must be April 1st.
  14. FreeSarah

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Makes perfect sense. Children are far more likely to get it from their parents that people who were never children.
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