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Interesting. I’m similar with sound sensitivity currently, but I’ve also got PEM. I have the awful coat hanger pain and very painful hips.

Exactly. He is entirely wrong in his theories about me, too! I was affected by food poisoning and/or virus I was bed bound a few days, then weak and exhausted (housebound) - I recovered and resumed work and life. I was affected by Krypto Sporidium in the water supply - guess what? I pushed...

Good grief! Sounds like he’s of the magical thinking LP ilk. I find it disturbing and disappointing. He has a fair few assumptions going on there!

Ah, yes ... possibly. What do you think @Trish

I’m bad with tree pollen. Not noticed animal hair. Yes, high pollen always worsens ME. I have had mild skin reactions in the past. I can’t tolerate antihistamines very well. Yes, the weather has been really strange.

Thanks, that would be good to try. I’ll have a look.

@wigglethemouse thanks - that looks similar to Prevalin

@Mij that's interesting, yes. We’ve had high pollen and there’s a lot of dust.

Thanks @Mij I’ll check your thread. It’s been high here too.

Hi @Sarah94 Yeah, I’ve tried Prevalin - it’s helpful to a certain point. We don’t dry clothes outside, windows kept closed when pollen rises and falls. We have two air purifiers too, they are helpful. I can’t have anti inflammatory medication too often as it irritates my stomach and I have...

Is anyone else badly affected by pollen? My energy issues and fatigue and migraines are all exacerbated by pollen. Really bad. I can’t use antihistamines. Nasal steroid spray wrecks my nasal tissue. All I can do is use saline nasal spray and Vaseline as a barrier on my nose.

I’ve sent my experiences in to carol and ME Association.

I find this very interesting. Clearly showing it’s not deconditioning.

Yes. I get the burning pain too and need to rest till it eases. Arms and legs get it.

I suffer from reduced stamina. It’s like there’s nothing in the tank .. low energy and very little by way of stamina .. both physically and mentally. Each morning I have a feeling of dread as I wonder how the hell I’ll get through the day. Yes, rapid muscle fatiguability - I often need to sit...

Thanks @Brian Hughes

Agreed. Thank you @JaimeS :)

Agreed. It has been emotionally draining, upsetting and hurtful. Some excellent responses from patients but complete silence from charities, except a little piece from Action for ME. Unbelievable. Absolutely unbelievable.

I’d have expected some presence & support from our charities. I’ve been really affected by this weeks attacks in the media. I feel that patients have been abandoned and left to defend themselves with what little strength they have. I don’t want my friends, family, GP or whoever reading and...

That’s very interesting! I have great difficulty being outside. I have Angina too so that is part of it, but I get spaced out, derealization, dizziness and nausea if I’m walking outside. It happens fast, I can’t go out on my own.