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  1. dangermouse

    ITV Channel News: "Living with ME: Gary Burgess shares his story"

    :balloons: Congratulations @Gary Burgess :balloons: Hope you're OK.
  2. dangermouse

    Weds 11 April, 2pm | One-minute silence in memory of 'Bob' - Robert Courtney

    I’ll be joining at 2pm
  3. dangermouse

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Great brainstorming and teamwork :thumbup: I reckon in a day or so you’ll have a few solid options to put to a poll. I’m still thinking #Justice4ME but would be happy with a few of the other suggestions.
  4. dangermouse

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Some really good suggestions. I like: #Justice4ME. It’s short, to the point, not too fiddly to type and I like the definition (thanks @Sly Saint ). #IStandWithScience. It’s clear and to the point. Gets a message across. A little more fiddly to type than the former.
  5. dangermouse

    Mike's EU Marathons

    Well done @Mike Harley and thank you :thumbup:
  6. dangermouse

    Very little happening!!

    This :asleep:
  7. dangermouse

    Cognitive Impairments in Fibromyalgia Syndrome: Associations With Positive & Negative Affect, Alexithymia, Pain Catastrophizing.., 2018, Duschek et al

    It’s disappointing that they’re still churning out this nonsense :banghead:
  8. dangermouse

    David Tuller's new crowdfunding campaign (April 1, 2018)

    PayPal would help :)
  9. dangermouse

    United Kingdom: National Inpatient Centre for Psychological Medicine (NICPM)

    This :)
  10. dangermouse

    Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

    @dave30th What a lovely post! You are SO appreciated. It’s so nice of you to say that you feel privilege to work on this project...what a difference to how BPS people act towards us. Just...THANK YOU for everything that you do for us and on our behalf. You are a rock star! :)
  11. dangermouse

    Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

    Outstanding! Yep, a tearjerker. @dave30th and all concerned...thank you :hug:
  12. dangermouse

    Boom & Bust, where's the evidence?

    I’ve never compared living with ME to walking on a tightrope before....that’s exactly what it’s like. And, yeah, there is blame whatever you do. Ah, I’d forgotten about GETSET Julie! :facepalm:
  13. dangermouse

    United Kingdom: National Inpatient Centre for Psychological Medicine (NICPM)

    @JohnM thanks for producing that post. As I suspected and not a surprise. Thank you.
  14. dangermouse

    What is Action for ME's current (March 2018) position on the PACE trial?

    Oh dear, Clare @Action for M.E. New patients (and vulnerable patients who are not aware of the issues with GET and CBT) will rely on you (as a charity for this patient group) to look out for them. They may well skim read (as they are energy deficient, very unwell and desperately wanting help)...
  15. dangermouse

    PACE trial’s findings fundamentally challenged by a new study (Simon McGrath blog 22 Mar)

    Thank you @Simon M :thumbup:
  16. dangermouse

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Well done and thank you to all who worked on this.
  17. dangermouse

    CBT- Jen Brea Twitter

    Hello and welcome @JenB :) It’s good to have you here on the forum. I can’t really take all this thread in as I have horrible difficulties with cognition, but thank you for taking the time to take part.
  18. dangermouse

    Dutch Health Council on ME/CFS tomorrow on national news

    Thanks for all the information on this @Mattie it’s appreciated.
  19. dangermouse

    A general thread on the PACE trial!

    Well said @Esther12 It is typical, isn’t it.
  20. dangermouse

    PBS Media Meet discussion about ME CFS

    @Mij yeah, that too.
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