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  1. dangermouse

    The ME Show

    I hope you continue to do the shows @Gary Burgess they are the first of this kind, that I’ve come across, that are relevant, interesting and informative whilst forming a kind of connection for people with ME. Yeah, I think Mayor Andy Burnham (for the reasons @NelliePledge highlighted) would be...
  2. dangermouse

    Ideas For Marketing ME More Effectively...

    Foggy here so hope I make sense: I agree that clever marketing is needed, I’m not sure about the living death..it’s true but as it’s different severities it could cause some confusion? Maybe? What stands out to me from Saturday’s (outstanding) Millions Missing (thanks to everybody who...
  3. dangermouse

    The ME Show

    Really enjoyed the show @Gary Burgess. Do you prepare the questions? They’re good..relevant. Really looking forward to next week with Carol Monaghan MP. Makes you wonder if Andy Burnham (Mayor of Manchester) would be good to approach to see what influence he could have. He attended Millions...
  4. dangermouse

    David Tuller Trial By Error: My Visits with Alem Matthees

    Great that you visited Alem, @dave30th :thumbup: Powerful, hard hitting piece that only the heartless could not be affected by. Thank you and thank you once again to Alem, one of the most selfless and brave people on this planet. :hug:
  5. dangermouse

    The ME Show

    @Gary Burgess you’ve made my day! What a real pleasure to listen to @JenB at such length and to hear from @Robert 1973 and listen to the song. I felt connected to others and uplifted. Great quality audio that I found nice to listen to and you have excellent interview skill. I loved this...
  6. dangermouse

    1st ME/CFS Canadian Collaborative Conference

    Wow, so much going on here..in a very good and positive way! :thumbup:
  7. dangermouse

    Anybody had an angiogram ?

    I have had an angiogram. The procedure took around 30 mins. I had a lovely nurse support me as it was happening. She gave me a sedative that really helped. I didn’t feel the procedure, except for pressure as the catheter was inserted into my artery (starting on inside of right wrist). The...
  8. dangermouse

    AFME provide new self advocacy support material

    I agree with all that has been said and addressed above. I hadn’t the energy to read all that text, thanks for breaking it down @Hutan Once again, VERY, disappointing @Action for M.E. @large donner I agree. I think members of this forum could contribute and produce a user friendly, more...
  9. dangermouse

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    Am I correct in thinking that “they” are researching false illness beliefs and catastrophising (yet again)? Why are they SO stubborn and tenacious with this belief? It’s money wasted time after time in order to ... what? It’s already absolutely clear that this patient group desperately want...
  10. dangermouse

    A song for ME: Blowin' in the wind

    An amazing achievement. Emotive. Perfect. Well done.
  11. dangermouse

    The ME Show

    This is great @Gary Burgess :thumbup: I appreciate you doing this and the sound quality is clear too. I’m looking forward to these podcasts and I’m hoping that people in my life will learn from them too. Great that you’ve worked with ME Association. Hope you’re doing OK, don’t overdo it.
  12. dangermouse

    Blog: So I got married, Gary Burgess

    :balloons::balloons: Congratulations and very best wishes to you both @Gary Burgess :balloons::balloons::balloons:
  13. dangermouse

    Travelling tips anyone? (car)

    I have gotten terrible in a car, especially back seat and when too much breaking, bends, g force etc. I get severe nausea and vertigo and get desperate to get out of the car and vomit I really feel for you, and I can understand you want to go for your wife. I don’t really know what to...
  14. dangermouse

    Healthwise to "retire the GET/CBT topics" from medical content

    Fabulous news....well done & thank you @Webdog :thumbup: You are awesome!!
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