Search results

Thanks but where does Fukuda fit into it? I can cope with IOM criteria but Fukuda is a joke.

What does this mean for us... Is VA the CDC?

Not offended @Alvin, just don't agree. While he might be very enthusiastic at times, some patients like myself need that and appreciate it. God knows there's enough of crap going on in the M.E world, it's wearing. So a bit of a lift every now and then goes down well with me... even if slightly...

Cort does a lot of good work explaining latest research findings, I look forward to his updates. He provides a great service to our community.. 'Is there anything he won't hawk' seems a bit harsh.

Just listened to episode 2 @Gary Burgess. You are such a gentleman, a fantastic interviewer with such a lovely voice. Really enjoyed the show, perfect length as well. Keep up the great work and thank you!

I fail to see any humour in the situation at the moment.

Can I ask are people here feeling any ways hopeful about NICE review? I'm feeling more deflated by the day.

OH my God, that is terrifying... It keeps getting worse

She might surprise us yet @Jonathan Edwards The main reason we are not way ahead of where we are is lack of funding.

I don't agree, I think most that recover have post viral fatigue. They don't have M.E. as per ICC. Nancy Klimas has said in one of her presentations that once homeostasis is knocked out of kilter in M.E there is no way back. Same for Gulf War Illness. If it was that easy to recover, researchers...

Well maybe if doctors could diagnose M.E, there would be none of these nonsensical LP recoveries. It's not difficult to diagnose if a doctor can understood pem and crashes. But alas, doctors don't know or want to know in some instances? Some think fibromyalgia and M.E are the same thing. Until...

Thanks @Adrian...great to hear positive news

Thank you, that sounds reasonably promising. What brought about Holgate's change of heart? He treated Dr Geraghty terribly from what I just read. Last question..

Sorry I am so clueless as I don't reside in U. K. What is Holgate's roll now and who is the present chair of the MRC... I gather the current chair is focused on biomedical research.. Is that correct?

They are very slow learners

Vague

Thanks @hixxy for making me laugh... I hardly ever laugh these days but you and your emojis made me giggle!!

So they all present and then what? Is it going to achieve anything, like funding?

My sleep is desperate since ME started, it was hypersomnia initially, now complete insomnia. I've tried so many meds. I need some kind of horse or elephant tranquilizer. The insomnia started early December and I can't get a handle on it. I crave Orange juice when I wake. It's so messed up.

Check out @oslersweb’s Tweet: Let's hope this time we make some strides....dog chasing tail comes to mind. Carol Head and ME Action member at the table is a big plus (I hope).