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Brilliant article.. Definitely saving it.

I wonder if it turns out to be right, how long will it take to get it approved. Has anyone any idea how long this kind of thing takes.. I know funding is a huge factor.

Super idea

Anyway there are loads of causes.. I think it's more important to try solving this disease and figure out what goes on once it kicks off rather than focusing on all the different causes that have led us to the same tipping point.

It seems like there are numerous triggers and we can't detox properly. Maybe mold is the cause for a small cohort but not in the main. Didn't Julie Reyhmor (sp?) recover once she removed herself from mold environment. It seems like beating a dead horse to me. There is a lot more going on in this...

Thanks @Aroa... Glad he is going to keep going anyhow

Where did you get that impression from Robert Phair @Aroa I thought he was all enthusiastic. I did not see any video footage of him recently though..

I don't think it's hype, these guys seem genuine. It's awful early days yet so no telling how it will go.

Didn't notice that and I cant believe I'm discussing smell of farts :facepalm:

I sweat if stressed or overheating and it's a completely different odor to the smell of healthy sweat (TMI) It's yuck. I've noticed it from illness onset. Has anyone else experienced change in body odor. Probably the reserve of the severe.:confused:

@Ben H thank you for replying and u did great with questions... Id love to see how good I'd be.... A disaster!! I suppose we are all hanging on to identify that something in the blood or news on trap. Mold and mercury seem like small asides going nowhere. I'm a mess myself so I vent maybe too...

I have to admit I felt deflated after watching it. The mold idea... I'm not impressed with. Mercury neither. I better stop. Maybe I'm not thinking clearly. The trap, nanoneedle and something in the blood all sound promising. The development of wearable wrist bands.. Don't get that either. Anyone...

Is it possible that the identification of the 'something in the blood' could be an important Breakthrough. If it were identified could we then be on track for effective treatments?

Gosh for me that's too complicated and way too much involved. Since there is now an extension until May 1st could we get behind @Michiel Tack and submit his proposal from the forum. If people want to submit individually they can. I would like to be involved in some way so a submission from the...

I don't have Pots but I have severe OI. I cannot tolerate sitting upright for more than 20 minutes. I am 22 hours a day horizontal. I feel more comfortable walking to kitchen or bathroom than standing for any length of time. I feel like my heart can't sustain me. All since M. E onset... Never a...

There has been talk of that trial for well over a year now and nothing happening. OMF are the only ones with a real sense of urgency imo

Was he in the room when that was said is the question? Did his big musical ears hear her????

Brilliant that we can watch in our own time afterwards. Thanks @Andy

@Michiel Tack I agree with @Inara. I certainly think you should send on the work you have done, you make excellent points. I feel the NIH need to visit their current position in relation to funding of trials for ME/CFS as there is no mechanism in place for us at present. We still haven't one...

@dave30th a visit to New Zealand would certainly be worthwhile this year if you could manage it