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@Andy what does that mean 'too high an error rate' if they haven't been able to disprove the theory. It seems contradictory. Is he still optimistic about trap?

@Trish, I agree with what you have said including your edit.

Where does it say it will be recorded? Sorry I can't see it.

Well surely someone else can step in, there has to be more than him in his lab. He's hardly a total lone wolf. I'm hoping someone will be able to publish his papers. But then what do I know either... Just hoping.

At least it's not Dr. Davis, Hanson or Derya Utumaz....

I know of numerous people who have declined despite good care including myself.

A ridiculous statement.

I went to see her when I first became ill. I took nothing from it only to eat salty foods. M. E can be progressive, to say it is not is ridiculous and again minimizes the magnitude of the illness. She did not speak about severe M.E in her talk either. I wasn't impressed.

Well we do have the metabolic trap and it seems to still be a viable hypothesis... Fingers crossed!

What the hell is the first grant.. Use of a rocking bed!? Pleeeease :rolleyes:

Yes, Jarred Younger uses Fukuda. I am delighted to hear that Solve are insisting that applications this year must use criteria that includes PEM... I hope that means PEM is mandatory in all patients selected. Otherwise as the doctor working on the Intramural study once said, his name escapes...

Thank you @Emily Taylor!!

Cyclophosphamide paper was supposed to be published in late 2017...its a long wait

@Keela Too please bring this to the NICE Committee's attention. I feel sick to my stomach. How can this continue to happen.

That's a lovely hopeful response.. Well said!

I emailed them a few times. They have now decided to forego DVDs this year and make presentations available afterwards..they will have edits to make so cannot commit to a definite time line for when presentations will be available. I haven't been on their website.

No DVD this year, they will put presentations on YouTube afterwards

Surely Lloyd won't get it all....jeez I'm so sick of this blasted Rollercoaster :wtf:

Will they have DVDs available for purchase this year? I messaged a few times and still no definite response.

I don't understand the need to put a shine on the fact that one's life is stolen. What happens if anything happens to her mum. There seems to be rose tinted spectacles on. I am grumpy today. I just think it's not OK so no point fooling oneself that it is. Or worse still, putting across the...