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Thanks @rvalee....you always say exactly what u think so I'm delighted that you are impressed...you don't give praise unless it's well justified!!

Good news so damn rare!!

Great provided they use proper criteria and patients that suffer from sensory overload! I had it when I was moderate. Now I am severe it can be quite bad some days.

Maureen Hanson's words were so powerful, certainly to the patient population.

Thanks @Andy....maybe something will show up from somewhere else before a decade is up.. Here's to hoping! We have a number of researchers on the case thankfully.

That response makes it sound like we are a long way away from anything that will help us. Glad to see the input but it seems like we are looking at a long road ahead. Any thoughts? Also hundreds of thousands.. We don't have info on hundreds of thousands of patients and unlikely will for another...

I would point out that some of us have little else to spend our spare few Bob on... That's my situation so I donate as it gives me hope too. We are too ill to eat out, go on vacation, go anywhere.. I'm certainly not suggesting in my other post that people should donate if they can't afford to...

What worries me is anyone can use the app, so people misdiagnosed could well use it. Are we just going to end up with nothing meaningful from information gathered? Apologies if this same question has been asked already.

I donate monthly to OMF. My friend recently did a sponsored cycle and raised a decent amount for UK ME/CFS biobank. I do all I can not just for myself, obviously id love a treatment or cure to save me before it's too late. But I also strongly believe in the cause. It breaks my heart to see...

What worries me is anyone can use the app, so people misdiagnosed could well use it. Are we just going to end up with nothing meaningful from information gathered?

Yes!!!!

There are a hell of alot unusual cases then..

That made me laugh out loud!!!

As far as I am aware OMF have at this point tested 65 patients and all test positive for IDO mutation.

I felt Slightly encouraged after watching Don Staine's presentation. It's great to hear that they will be looking for treatments.

I don't get the need to constantly put down the positives. The testing on the nanoneedle has been 100 percent accurate so far. Ron Davis is optimistic.. I will join him.

Well one thing we haven't had in the past is the real potential of a proper diagnostic test.. The nanoneedle. This could be the game changer. I have big hopes for all the Collaborative work OMF are doing now...a long road but it's looking more promising than 10 years ago.

Has anyone any idea when YouTube clips will be made available from Conference?

Is Karl Mortem going to stick with us and stay working on M.E given this lovely news? I hope we won't lose him.. I haven't read through thread.

Thanks @Andy.. I had to smile that you didn't bother with notes on Unger's presentation!