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It definitely helps some but not all of us unfortunately.

God you'd swear they just discovered ldn and it was brand new... I've no faith in this gang. They are good at blowing their own trumpet I'll give them that. Ldn did not help me, I tried three times starting very low. I fainted at one stage and I've never fainted in my life. So it's certainly not...

Many pwme have tried mestinon to no avail.

Strong or long lasting pain. I have severe M.E. but I don't have pain. More subsets I guess.

Develop a process for generating a strategic plan... Sigh. A process??

Funny.. Thanks for the giggle!!! My own b12 levels are well above normal range due to supplements and I've steadily declined in past 3 years unfortunately.

Yay for a positive reply!! I thought he came across well, I really think we have to appreciate any pluses that come along.

We so need a diagnostic test. This is a complete and utter circus. I can't take much more of this absolute BS, it actually beggars belief.

@Andy I know it was mentioned above the whole glutamate picture. I'm so interested in his thoughts. I'm severe and klonopin helps me, it helps me function a little longer and clears the fogginess. Without klonopin I'd be unable to attend GP. Klonopin also helps me sit upright for longer and can...

If that's the case, it sounds like something that would be extremely complicated to treat imho

I'd be glad of treatments in 3 years.. Very glad. I don't really expect a cure.. I'm sorry you are disheartened @Perrier. I think we have to just put our trust and hope in the researchers. Try to keep heart.

That wasn't the impression he gave at Symposium.. He had identified 5 ME subsets. It seemed that he had alot of work done.

Relieved to hear this explanation. Thank you @Sing

Can anyone tell me if the metabolic trap is still a viable hypothesis or is it gone out the window?

I was impressed with Alain Moreau's presentation. I missed most of the others but he left me with a feeling of optimism. I agree @strategist something in the blood needs big focus.

Disappointed that Jarred Younger can't attend...

I liked the presenter Steven Roberds.. Hopefully he will stay working with us..and actually care enough to push things along.

Thank heavens it was approved... Way too much emphasis on fatigue yet again.. Walter's comment on the marathon runner actually made me break into a sweat.. Obviously still NO idea what ME is!!! Jeez.

I so hope that act on some of this, that it won't be left aside gathering dust

@rvallee have u any idea when we will know if Alain Moreau's research proposal has been granted funding?