Search results

Don't draw MS on us....leave him be!

So true, it punishes you for trying to live a little.

Why shoot things down so quickly??? I for one am grateful that some treatments are being trialled for us. Even if this only gives a small improvement, I'd grab it with all my heart.

@ME/CFS when approx will this treatment become available? I would be so glad of any improvement. Fatigue is a big issue for me as I need to sleep during the day. I hope we won't have to wait years for this considering it has no harmful side affects...thanks for all your replies..

@Dave 30th a while to go yet, I think it will come good. My husband is called David and a complete saint. But next to him, you have got to be the best David I know. We are all so grateful to you, that Aussie video showed what a super man you are, we knew it already but you really got me on that...

Every dog has his day is right!! Brilliant @Webdog and thank you!! It's so great to read positive news. Keep up the good work, sounds like you enjoy digging out those bones

I'd like to see more studies on the brain...there are so few!! Afterall it's a neurological disease?

I donated ages ago but the amount raised hasn't increased since....which is odd

Are there any studies underway at present looking at the brain? I know Maureen Hanson is doing brain MRIs after exercise and the intramural study will look at the brain. Anyone else? It seems to be an area that is being overlooked by OMF and the remaining 2 Collaborative Centres. Jose Montoya is...

Someone who suffers from social interaction!! Isn't it an awful aspect of this illness..

Totally with you Mattie, I purchased the Gupta programme too in early months of illness, what a load of codswallop. I also had sessions with the ME self help guru. I would have tried anything. I know better now. @Invisible Woman I actually had a row with my dad yesterday, he was on about one of...

Done, it wasn't too bad and covered alot. I noticed no mention of crashes brought on from social interaction such as visitors or chatting too long on the phone. A real debilitating and horrible part of my illness. I did add it in on my notes.

Does anyone know if a dvd will be available this year of conference....I emailed weeks ago enquiring but heard nothing back

I know, I Feel Like I'm always complaining, its just my health is declining so rapidly since February, I feel like I'm dying. Honestly, it's not an exaggeration. I keep praying, hoping but this disease is just taking over my body and I'm weakening every week. If it were only me and I had no...

It is Mattie and even harder when you are wasting away yourself.

Is it me or is there very little happening in research news so far this year?? There are publications but nothing of significance. This time last year we were all excited about 'something in the blood' stressing cells as per Ron Davis....that level of excitement has not happened since, apart...

So sorry @chicaguapa, that is so awful that they would not even attend Unrest. Little by little we will chip away at the stigma hugs xxx

That is so damaging.....it totally undermines the seriousness of ME...and if the message being put out is you can recover and get back to normal life....why would we need investment in biomedical research. As my cousin from the UK advised me...get a good nutritionist and sleep therapist and you...

So moving, brilliant!

Does anyone know if ME Action etc.... are stepping in and doing something...are there any ME organisations acting up to try to stop this. If this goes ahead, its a really massive setback. @Emily Taylor