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I think ME/CFS has only received credibility in the States recently, it is still way behind. This study concluded in 2016.

She is a great speaker....gosh 100,000 by June 2nd is a big ask...I wonder why such a small window? I will be very surprised if they reach that target but very much hope they do!

God bless Simon for posting something with a positive outlook....very much needed!

Never heard of Mark Guthridge, is he another M.E researcher? I love to hear new names on the case

I have no idea what that means for me as an ME patient!

Depressing, hope ME Action and Solve can change things....

I wonder why they aren't appearing on donor wall even as anonymous....jeez we are conditioned into expecting something to go wrong!!

I know, I wondered the same!!!

Feck, where did that come from!!! Brilliant!!

I can't understand any of this only that it doesn't sound like it bodes well for us. Sometimes I feel like our battle is lost. I had an occupational health appointment during the week as part of my fit for work assessment. I explained to the doctor the devastation has had on my life. I am now...

Oh God yeah, the last thing we want are chronic fatigue I'm recovered due the Lightening process BS. If only a line could be drawn that separates ME/CFS as per ICC from Oxford criteria folk. I dont believe for one second that there are 250,000 people with true ME in the U.K. There is an...

An interview with Simon McGrath, Chris Ponting are suggestions. Also the severe patient in Liverpool, Sophie Cooklyn, maybe her partner could speak on her behalf if she was unable to do so....Jessica Bare Taylor is another patient who featured in Unrest and is about to punlish a book 'Girl...

I love Carol Head, her commitment, passion and talent are second to none. We are so lucky to have her. She comes across as a very genuine lovely lady and is a strong speaker and negotiator. She gives me hope too.

I am trying to get in at.present

Alvin, I hope you will be on reddit so you can ask those questions..

Processes can be changed. Fact. Lost lives can't be returned.

Congrats Gary!!

Oh Lord, that has made me laugh!!

Glad to see another baby step forward for us, it's one hell of a mountain

Did we scare ME/CFS off? I just want to know where he as at now in terms of trialling the supplement?