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Why should they when "leading experts" don't :banghead: I'm still annoyed about how Wyller got a grant to study adolescents with CFS, and then when the music study came out it was about adolescents with CF that may go on to develop CFS.. :confused:

For some of us symptoms are at their best with menses ;) Menses and follicular phase are usually when I function the best. I know others who say the same, but also here there is a social constraint that you shouldn't talk about it, and the added "women are at their worst with menses!" social...

In Norway it takes ~five years on average to get an endometriosis diagnosis. I don't doubt many are misdiagnosed with something else along the way. And chronic fatigue gets conflated with chronic fatigue syndrome.

My ferritin levels have never been an issue. Though I want to point out that ferritin reference ranges have been based on "expert opinion" and some argue the lowest range is too low. Quoting myself from another thread where ferritin levels were discussed:

A post containing tweets on the topic of a seminar held in Oslo on LC/ME/CFS has been moved to the seminar's own thread on the forum: Norway: Article about ME seminar with security

I hope it works out for you. Frustrating how it is so important to avoid a single person not being worthy of support receiving it in any form rather than making support systems easily available to those who could benefit from them.

Someone has shared the invitation, speakers and participants following a FOI request on twitter:

When I had timeseries metabolome data there were large variation from measurement to measurement on a lot of the compounds (in total we had 1700+), not difficult to find a difference between two groups by chance. Data was then measured every two, four or ten weeks. We even had near perfect...

Haven't read the study, but lipids can be changed by lipids in the diet. Things like increasing intake of pre-made foods after becoming ill could contribute to differences between patients and controls as sources of fat in these foods could be different than what is used when cooking onesself...

12 weeks sounds like a short timeframe. I'm assuming potential participants have normal (that is to say, low) intake of omega-3 fatty acids, so the first 4-8 weeks would be an increasing level of omega-3's in tissue and then only a month at saturation. Depending on dosage of course, which I am...

Sick leave in Norway has increasingly been caused by "unspecified fatigue", potentially being after effects of covid infection. https://www.nav.no/no/nav-og-samfunn/statistikk/sykefravar-statistikk/nyheter/korona-preger-fortsatt-sykefravaeret (In Norwegian)

A great opinion piece by associate professor in Naturfag (biology) at NTNU and previous science journalist at NRK (our national broadcaster) on the study: Media sviktar samfunnsrolle i studie om alternativ behandling The media fails to play a role in society in a study on alternative treatment...

Skiing star Tiril Eckhoff retires from skiing after not recovering from corona last year. Tiril Eckhoff legger opp

Yes. In Norway though pregnancy removes the requirement of a nutrition problem lasting "a substantial time" before one can get oral nutrient supplementation on prescription. So at least those guidelines are possible to point to here. It makes me so mad the whole thing. And thinking about the...

More Danish news, 2/3 of patients at the Århus Long Covid clinic is still experiencing symptoms after 1.5 years.

"17 out of 100 danes experience sequelae lasting up to 12 months* after covid infection" *Not sure if the survey ended after 12 months and this is just bad reporting.

A small telephone interview survey in Norway have found that 14% of people who have had covid have not recovered by one month. One in seven has long covid (short news story in Norwegian): En av sju sliter med langcovid

:D

The difference in tone between Steinkopf's and Vogts comments are huge. And Steinkopf is the activist :facepalm:

Interesting how they keep bringing up social support but then focus on working on the patients attitude. Another part of the article (not Reme's research) This third factor is obviously influenced by the two others (and prognosis, and safe economy, and if one have lost someone close to cancer ++).