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[Apologies, I realised I'd missed posting this at the time it was asked] Jim Shannon DUP, Strangford To ask the Secretary of State for Health and Social Care, what information his Department hold son the number of people who have been diagnosed with long covid in the last 12 months. Tweet...

Tom Morrison Liberal Democrat Deputy Chief Whip To ask the Secretary of State for Health and Social Care, if he will increase funding for biomedical research as part of the cross-Government delivery plan for Myalgic encephalomyelitis. Tweet Share Hansard source(Citation: HC Deb, 28 March 2025...

Steve Darling Liberal Democrat Spokesperson (Work and Pensions) To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support NHS long Covid clinics. Tweet Share Hansard source(Citation: HC Deb, 24 March 2025, cW) Steve Darling Liberal Democrat...

Scott Arthur Labour, Edinburgh South West To ask the Secretary of State for Health and Social Care, what steps he is taking to support people with long covid; and what steps he is taking to increase awareness of the impacts of long covid. Tweet Share Hansard source(Citation: HC Deb, 17 March...

Jo Platt Labour/Co-operative, Leigh and Atherton To ask the Secretary of State for Health and Social Care, what steps his Department is taking to supporting people with Long Covid in the context of the closure of Long Covid clinics. Tweet Share Hansard source(Citation: HC Deb, 11 March 2025...

Jo Platt Labour/Co-operative, Leigh and Atherton To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 30 January 2025 to Question 26770 on Chronic Fatigue Syndrome: Health Services, whether the results from the NHS England stocktake will be published. Tweet Share...

John Martin McDonnell Independent, Hayes and Harlington To ask the Secretary of State for Health and Social Care, Care, if he will ensure that the cross-government delivery plan for ME/CFS will include (a) an apology to patients for their historic treatment and (b) clear steps that demonstrate...

David Reed Conservative Exmouth and Exeter East Commons To ask the Secretary of State for Health and Social Care, whether the final delivery plan on myalgic encephalomyelitis will be published in March 2025; and what steps he plans to take to ensure its effectiveness without additional funding...

The only version I've been able to find is this https://www.whatdotheyknow.com/request/electronic_copy_of_pip1043_2021/response/1897143/attach/4/AR1%20GB%20NP%20INTERACTIVE%202018%2006.PDF.pdf but I don't know if it's the most up-to-date version.

Great letter! One small point - in the signatories, you have Robert Naviaux as being in San Diego, California, UK. I'm pretty sure California is in the US ;)

I believe this is the online survey: https://survey.alchemer.eu/s3/90797431/Public-Consultation-Proposal-for-an-additional-costs-disability-payment-PIP-replacement

Two new articles in The Guardian: Devon woman died from malnutrition due to severe ME, coroner concludes https://www.theguardian.com/uk-news/article/2024/aug/09/devon-woman-died-from-malnutrition-due-to-severe-me-coroner-concludes What is ME and why is the NHS approach to it being criticised...

I don't have POTS (though I do have OH) but also react in much the same way as Milo with epinephrine in dental anaesthesia.

I had a look at the webpage on which the Benefits and Work article is based, and it doesn't actually mention ME/CFS as such. That seems to have been added by Benefits and Work. The original web page refers to 'Syndromes characterised by chronic pain and fatigue', which obviously includes ME/CFS...

My understanding is it's a representative sample of the population who are being tested. If 1% test positive, that can be extrapolated to 1% of the population likely to test positive. Although, in actual fact, there's some adjustment of the figures to accurately determine the rate across the...

It's run by the UKHSA now, here https://ukhsa-dashboard.data.gov.uk/

https://www.gov.uk/government/news/ukhsa-and-ons-release-latest-winter-covid-19-infection-study-data So it seems they are still doing the random testing of those 26,000 and basing their figures on those results

In response to point (ii), the first question is "In what capacity are you responding to this survey?" with the following options as responses An individual sharing my personal views and experiences including carers and family members An individual sharing my professional views On behalf of an...

They are still updating the data at https://coronavirus.data.gov.uk/ I'm not sure how complete it is, of course. The Zoe study is also still updating (here: https://health-study.joinzoe.com/data)

I also have been invited under the new criteria. Like Peter, I assume I was excluded originally because of other conditions. Similarly, I have also said I'm happy to contribute DNA.