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It’s infuriating because if they listened to actual pwme the repeated refrain is people sharing they kept trying to push through whilst just getting worse and worse. It’s just the same nonsense about ‘chronic fatigue’ (criteria is always v loose) that has been pushed since Wessely.

I understand the studies so far showing abnormalties are scientifically still weak. I note the American doctor who answered made bold, unsubstantiated claims that the pathology exists and it’s in the supposed feedback symptoms between brain and body. As you said the important point is these bps...

Ha ha, afraid not!

And the treatment of course is - CBT and GET

Done :)

The Chair, David Beaumont, a British GP originally and ex Atos apparently, is a director of a Fit to Work company. - https://nz.linkedin.com/in/david-beaumont-9437802a Director - Fit For Work 2016 Ltd

Moderator note: Thread moved from 'General ME/CFS News'. It’s interesting to listen to the last 2 minutes of this short 9 minute video, so starting at 7 minutes, where one of the doctors, the Chairman I believe, poses a question as if he is a ME patient. The response illustrates the...

@strategist, Jonathan has responded to this elsewhere on s4me, see screenshot above.

Caveat - I have zero scientific knowledge. Don’t some argue some viruses such as enteroviruses can only be found in blood in initial stages of infection then they retreat often into tissue, with particularly affinity to brain tissue, so unless have looked at tissue too can’t count virus out?

Yes, a Daily Mail article 2 weeks ago about Karen’s surgery reported her as telling the newspaper she was misdiagnosed with ME initially but now has a diagnosis of EDS. However, of course if Karen is still saying she has ME then I can only presume the Daily Mail wrongly reported it as her...

Thanks. Good to know my brain hasn’t completely stopped working.

I am possibly not thinking straight but did you mean @rvallee to write the word ‘dont’ between goons and deny? Thank you.

This is just an observation but Jen shared on twitter a while back after mold avoidance and Valcyte in 2014 her mental stamina and cognition were much improved and one tweet described herself as for the most part by then not suffering cognitive PEM or rather have greater than average cognitive...

Thank you for taking the time to reply. I too like everyone on here am very happy you are in remission. I am surprised until there is better objective testing for ME you would not even consider at least the possibility of misdiagnosis. I realise you nor I can’t definitively say yes it was or...

I am sorry I don’t see any anger on this thread? I just see people politely asking questions and discussing Jen’s remarkable story of remission of symptoms after surgery.

@JenB, i too would be interested in your answer to this question? Thank you.

I should make clear it is me who filled in the words ‘not based on false science’. All I remember is Unger in the past didn’t say GET and CBT were taken down because science has shown them not to be effective. She just used some nonsense wording that didn’t really make sense if I recall...

@JemPD, ME advocate Eileen Holderman who was a voting member of the CFSAC shares in this tweet thread the many times Unger has wrongly treated ME as having a large psychological component. I only just read today that Unger was co author with Reeves of his dreadful Reeves criteria. I doubt...

Thank you!

Thanks for replying @EspeMor, and hear you they were fully briefed but unfortunately you didn’t answer my straightforward question of were they briefed about this actual online course? Sorry it’s not a massive issue - there was some good content in the briefing I read - but it would be nice to...